EarthMother Posted September 2, 2005 Report Share Posted September 2, 2005 My apologies for being away from the boards. On the one hand I have been in such a deep rabbit hole, but on the other my body is doing better and little by little I am doing more.I came across an author this summer who talked about so many of my symptoms in one neat little package that I had to share her with those who are stuggling with some of their POTS symptoms.First a disclaimer: POTS is not an anxiety disorder. We are not crazy. Our symptoms are real and no matter how much you meditate, reduce your stress levels and do biofeedback you can still have POTS. I don't want anyone to think I am agreeing with all of the doctors we have seen before who said to us "this is all in your head", "your problem is just stress". It's not. It wasn't. I know better. And so do you.However, this sweet (now departed) Australian doctor from the 1960's and 1970's seemed to have touched upon a syndrome that shared too many of the symptoms that I have to ignore. We all know that POTS can cause heart palpitations and skipped beats. And some POTS people have no problem ignoring these "normal" occurances. But for those of us who over the years have REALLY tried to ignore these (and other) body sensations but we just can't seem to "deal" with them. I would recommend her book.I first heard her voice on a free download from Audible.com (not sure this link will work, if not go to audible.com and look up WEEKES.)http://audible.com/adbl/store/product.jsp?...=BK_HIGH_000012She talks about a condition she calls "sensitization". And in her books and tapes she describes it as a dysfunction of the autonomic nervous system. (Hmmm, sound familiar.) She explains that when your body becomes sensitized (which is a really physical reaction, not something brought on by anxiety or stress) that when you are in this condition you may experience palpitations, skipped heart beats, nausea, weight loss .... But then she even talks about how for some of us we feel better at night/evening only to wake up ill again the next morning. I KNOW these symptoms. I've fought them for years when I go into a POTS crash. What amazed me is how she was able to explain all of them. Even the dizzy feeling upon standing. In simple terms that took the mystery out of it. Part of what is hard for me with the history of POTS is all the "new" symptoms and wondering what would happen next. But there is no mystery, she explained. A sensitized system will follow a logical course, A to B to C and by taking the mystery out it helps to face and accept the state we are in.Her "cure" is all couched in facing, accepting and letting time pass. Anyway, I really don't mean to sound like an infomercial. Dr. Claire Weekes passed away in 1990, she's not a mega conglomerate still trying to make money. She has only a hand ful of books and tape and many are hard to find. But for those of us still struggling with the "panic" pieces of our POTS I would highly recommend a listen. Her wonderful accent is soothing and comforting. I plan on sharing a copy with my doctor to help de-mystify some of what happens to me when I go through a crash.If anyone wants to talk about Dr. Weekes further, feel free to send me a private message. I have more info on how to get her books and even a special DVD that one of her former patients has access to in England.Good luck to all of us on our healing journey.EM Quote Link to comment Share on other sites More sharing options...
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