brethor9 Posted December 14, 2022 Report Share Posted December 14, 2022 Hi All My HyperPOTS/Dysautonomia has decided to completely go haywire since entering early Menopause in the last year due to ovary removal. The problem is I'm dealing with Bradycardia (Hrs in the 40s) and Tachycardia now. Sick Sinus Syndrome has been ruled out and my specialists say my heart structurally is fine. I honestly believe that my hormone changes are at play somehow but can't figure it out. None of my 5 specialists have answers either. I am currently on just an estrogen patch. My endo refuses to try any other hormones and here in Canada it's next to impossible to find hormone specialists. So I'm looking to my fellow POTsies for any help, recommendations and insight you may have on this topic. I'm bedridden and desperate. Quote Link to comment Share on other sites More sharing options...
redpenny11 Posted December 25, 2022 Report Share Posted December 25, 2022 So I don’t have answers sadly but am experiencing the same. I am 47 and since earlier this year my heartrates are hovering low forties (holter showed 29 while asleep). (I’ve had POTS for 12 yrs) Cardio says it’s just dysautonomia and a specialist in autonomic dysfunction said he has seen that but not often . I rarely go high anymore although if dehydrated I’m still low level tachy. I was told a pacemaker would elevate the numbers but I would still feel the same so not recommended. My best guess is hormones are the contributing factors . My thyroid always shows normal but I have every symptom of being hypo. Extreme Fatigue and nausea/dizzy are my worst symptoms . I wish I could find someone who could figure out how to even slightly improve symptoms . I’m sorry you are experiencing the same. I honestly prefer just the tachycardia because it was easier to mitigate . Nothing seems to help this . Quote Link to comment Share on other sites More sharing options...
brethor9 Posted May 26, 2023 Author Report Share Posted May 26, 2023 On 12/25/2022 at 9:11 AM, redpenny11 said: So I don’t have answers sadly but am experiencing the same. I am 47 and since earlier this year my heartrates are hovering low forties (holter showed 29 while asleep). (I’ve had POTS for 12 yrs) Cardio says it’s just dysautonomia and a specialist in autonomic dysfunction said he has seen that but not often . I rarely go high anymore although if dehydrated I’m still low level tachy. I was told a pacemaker would elevate the numbers but I would still feel the same so not recommended. My best guess is hormones are the contributing factors . My thyroid always shows normal but I have every symptom of being hypo. Extreme Fatigue and nausea/dizzy are my worst symptoms . I wish I could find someone who could figure out how to even slightly improve symptoms . I’m sorry you are experiencing the same. I honestly prefer just the tachycardia because it was easier to mitigate . Nothing seems to help this . redpenny11 did you ever get any answers about the Florinef? Since early menopause I am wondering in the Florinef that I have been in for 12 years is now interacting negatively with my Estrogen HRT. No matter what I do I can't seem to stabalize. I'm now as sick as I was 12 years ago before diagnosis. It would seem Menopause has crashed the system... Quote Link to comment Share on other sites More sharing options...
redpenny11 Posted May 31, 2023 Report Share Posted May 31, 2023 I stopped florinef maybe a year ago , it wasnt making a difference in how i felt like the first time i took it when i was mostly tachy. I am still struggling with bradycardia, fatigue, light headed feelings more often than not. No one has any answers its pretty discouraging honestly. And its most definitely worse around my cycle and a day or so after a stressful event. I would agree perimenopause (and having covid )really set me back. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted May 31, 2023 Report Share Posted May 31, 2023 I haven’t watched this lecture, but perhaps it has something useful: Quote Link to comment Share on other sites More sharing options...
Jyoti Posted May 31, 2023 Report Share Posted May 31, 2023 My mother dealt with severe bradycardia post menopause. My POTS/NCS started at menopause and seems to have been balanced by very low resting heart rate, and 'normal' blood pressure that dropped significantly . Neither of us were on any meds and she refused all meds/pacemaker, etc. I don't know if our experience is of any value to you @brethor9 but I can surely relate. It sucks! Quote Link to comment Share on other sites More sharing options...
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