Jump to content

The Future of Treatment


Recommended Posts

Hi everyone, with my recent flare up of dysautonomia I've been looking a lot into neurology. As far as I am aware through a lot of testing with many specialists I do not have an identifiable cause such as autoimmune disease so these may not apply to everyone but I think every little bit helps. Here are some things I'm quite fascinated with:

1. Neurofeedback. Exsurgo chronic pain tool

This is a very new device called Axon designed for chronic pain but I think it's pretty clear that there's a lot of overlap in brain areas and activity between chronic pain and dysautonomia, especially sympathetic activation. I'll be watching with interest especially since it's being developed in my country of residence.

2. Neuromodulation   BRAI3N

This is a  neuromodulation clinic in Belgium run by University professors and medical doctors (not holistic health practitioners. Not putting them down or anything just wanted to make the distinction.) POTS/dysautonomia is not on the list of disorders but chronic fatigue and fibromyalgia is. I have been in brief contact with one of the professors (who is also a neurosurgeon and neuroscientist) over email and he mentioned nerve stimulation for dysautonomia. I am looking to have an online consultation with him as I am not in Europe just to see what he thinks about dysautonomia from a neuroscientific point of view. If anyone is interested I can update here if I do end up having a consultation.

Interestingly their explanation of CFS mentions the HPA axis which is what the Cortene drug trial recently has announced success with in treating CFS.

3. Pons device 

This was originally written about by Norman Doidge in his neuroplasticity books, I don't remember if it was the first or second one, and seemed to provide a variety of benefits to test subjects such as improved mood, sleep etc. At the moment most of the information you will find about it is on balance and MS because that's what the FDA have it approval for.

4. Infraslow Neurofeedback https://neurofeedbackservicesny.com/the-benefits-of-infraslow-neurofeedback-training/

There's a bit of a preamble at the start of the article but it explains the concept in an easy to understand way. (This website is for the clinic which has 'pioneered' this type of neurofeedback.) This is a relatively new type of neurofeedback which targets the ANS in particular and is currently used for high stress/anxiety problems. I think anything that shows it can directly affect the ANS is a very interesting and fertile area to explore!

I really do think that this is where a lot of the future of treatment lies, especially for those of us who don't seem to have a clear underlying cause such as autoimmune issues. Hope this was interesting!


Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Create New...