Pistol Posted September 13, 2021 Report Share Posted September 13, 2021 Hi! Just wanted to share my COVID story. 3 weeks ago my family and I came down with COVID. My husband was bad and had to get the Antibody infusion right away, he got better fast after that. My symptoms lingered: high fevers every day, fatigue, cough, shortness of breath ... went to ER 3 times, once for antibody infusion, always was sent home. Until finally on day 14 I could no longer breathe, fever 103.8. PO2 in ER was only 83. They admitted me for 4 days on O2, steroids and many other meds. Finally got to come home Saturday on home O2 and am slowly improving, although it will take weeks to get back to normal. What I wanted to point out is that despite the severity of the illness my POTS symptoms have been under control! Yes, BP is up a bit from the steroid, but no syncope, seizures or even BP surges! That is something unheard of for me, since I normally become severely unstable from even the slightest sniffles. I am hopeful to owe this good fortune to the Plaquenil my specialist put me on in December 2020. It really seems to have helped the inflammatory condition that was a definite underlying trigger for the dysautonomia symptoms. I hope this info will be helpful to someone. Be well, everyone! Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 13, 2021 Report Share Posted September 13, 2021 Hi @PistolI am so Happy to hear that you and your family are doing well. I can't imagine what you have gone thru. I bet you are tickled pink that your POTS stayed under control Rest up and get better. Quote Link to comment Share on other sites More sharing options...
Pistol Posted September 13, 2021 Author Report Share Posted September 13, 2021 Thanks @MikeO 😊 Quote Link to comment Share on other sites More sharing options...
dancer65 Posted September 13, 2021 Report Share Posted September 13, 2021 Pistol so sorry you have been so ill . I hope you get better soon . Look after yourself hugs 🤗 Quote Link to comment Share on other sites More sharing options...
p8d Posted September 13, 2021 Report Share Posted September 13, 2021 Welcome back. We were concerned. Quote Link to comment Share on other sites More sharing options...
targs66 Posted September 14, 2021 Report Share Posted September 14, 2021 I'm sorry that you and your family had Covid, but it's great news that your dysautonomia has not been worsened by it. I know so many people who are suffering from dysautonomia-type symptoms post-Covid. Wishing you and your husband a quick and complete recovery. Quote Link to comment Share on other sites More sharing options...
Pistol Posted September 14, 2021 Author Report Share Posted September 14, 2021 @targs66 - ironically my husband now seems to have some mild POTS symptoms! He seems to get very tachycardic ( 130's ) when he does anything. He had this problem bofore and took Verapamil but stopped it during COVID. I have him drink a lot and eat salt, hopefully he will improve. Thank god no fatigue! Thanks so much for the well wishes!!!!!! Quote Link to comment Share on other sites More sharing options...
toomanyproblems Posted September 14, 2021 Report Share Posted September 14, 2021 Pistol -- I'm so sorry your family went through all this. Please take extra good care of yourself. Quote Link to comment Share on other sites More sharing options...
Rexie Posted September 14, 2021 Report Share Posted September 14, 2021 Welcome back from Covid world - so glad you all are OK! Stay on upward wing! Quote Link to comment Share on other sites More sharing options...
targs66 Posted September 14, 2021 Report Share Posted September 14, 2021 8 hours ago, Pistol said: @targs66 - ironically my husband now seems to have some mild POTS symptoms! He seems to get very tachycardic ( 130's ) when he does anything. He had this problem bofore and took Verapamil but stopped it during COVID. I have him drink a lot and eat salt, hopefully he will improve. Thank god no fatigue! Thanks so much for the well wishes!!!!!! That's interesting - after my mother and I had Covid (at the end of last year), we both had tachycardia. My heart rate was jumping to between 110 and 120 without exerting myself. (It's unusual for me: my dysautonomia issue is very low BP/neurally mediated hypotension, not POTS). However, the tachycardia did seem to resolve within a month or two after having Covid (although we both have other symptoms that persist). I hope your husband's tachycardia also resolves, and that neither of you have any lasting problems. Quote Link to comment Share on other sites More sharing options...
CJ65 Posted September 15, 2021 Report Share Posted September 15, 2021 Oh no @Pistol ! I’m so sorry to hear this and also happy to hear that you are all on the mend. Quote Link to comment Share on other sites More sharing options...
cmep37 Posted September 15, 2021 Report Share Posted September 15, 2021 Big hugs @Pistol - that must have been really frightening. I am really glad to hear that you are feeling a little better. Look after yourself and I hope you and your family all carry on making a good recovery... Quote Link to comment Share on other sites More sharing options...
Delta Posted September 15, 2021 Report Share Posted September 15, 2021 @Pistol, I am sorry to hear this and I hope you and your husband/family are on the way to a fast and full recovery!! Quote Link to comment Share on other sites More sharing options...
POTSie78 Posted September 16, 2021 Report Share Posted September 16, 2021 I'm sorry to hear that but I am so glad that you are all getting better. That has to be scary going through all that. Quote Link to comment Share on other sites More sharing options...
Scout Posted September 16, 2021 Report Share Posted September 16, 2021 Just saw this now. I'm so glad you and your family are OK @Pistol! So sorry to hear you went through that, but I wish you the best for your recovery going forward. Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted September 16, 2021 Report Share Posted September 16, 2021 Oh, man, this is awful. Slightly hopeful, but 95% awful. Hope you're doing better and symptoms don't linger for you and the family. Were these breakthrough infections? Quote Link to comment Share on other sites More sharing options...
Pistol Posted September 16, 2021 Author Report Share Posted September 16, 2021 @MTRJ75 no breakthrough infections, we never got the shots. Doing OK, taking things slow. Quote Link to comment Share on other sites More sharing options...
Hippopotsamus Posted September 17, 2021 Report Share Posted September 17, 2021 Hope you and your family are feeling better soon! Quote Link to comment Share on other sites More sharing options...
yogini Posted September 22, 2021 Report Share Posted September 22, 2021 Pistol. Very sorry you had COVID and developed pneumonia. Glad to hear you are on the mend. In April 2020 I had a mild case of Covid (low fever, lost my sense of smell/taste for a few weeks). I didn’t have any POTS symptoms or flare from this which is unusual for me. Any health issue or unusual event causes a flare. I am still laying low and trying to avoid COVID as I am not convinced that my reaction would be this mild the second time around, even though I am double vaccinated. Too much is unknown. It will be interesting how the research between POTS and Covid develops as there is clearly an unusual connection between the 2. Again, sorry you went through this and hope you are fully on the mend soon. Quote Link to comment Share on other sites More sharing options...
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