MikeO Posted September 3, 2021 Report Share Posted September 3, 2021 Finally got access to my tilt table tests. Is it normal for a BP to suddenly tank while in the supine position? I have had this happen many times with other tests and procedures. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 3, 2021 Report Share Posted September 3, 2021 Many of us diagnosed with dysautonomia have labile blood pressure. We can't diagnose you obviously here. Good you have some data to work with. Checking bp at home and keeping a record can be helpful too with diagnosis and treatment. Do you have follow up with a specialist? Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 3, 2021 Author Report Share Posted September 3, 2021 2 hours ago, MomtoGiuliana said: Do you have follow up with a specialist? Yes i am being seen by specialist's but their focus is on my syncope episodes (cardiology). My Doc as he put it is unsure if my issues are cardiogenic in nature or neurogenic and or a combo. Getting a ANS test and diag in wisconsin has a long wait. My concern is the sudden minute to minute drop in bp i do get the orthostatic drop. I should have asked if any one has has have experienced a sudden drop in bp and then went back to base line. Quote Link to comment Share on other sites More sharing options...
POTSie78 Posted September 3, 2021 Report Share Posted September 3, 2021 16 minutes ago, MikeO said: Yes i am being seen by specialist's but their focus is on my syncope episodes (cardiology). My Doc as he put it is unsure if my issues are cardiogenic in nature or neurogenic and or a combo. Getting a ANS test and diag in wisconsin has a long wait. My concern is the sudden minute to minute drop in bp i do get the orthostatic drop. I should have asked if any one has has have experienced a sudden drop in bp and then went back to base line. I labile bp. Its all over the place within minutes. My HR also does the same. I can go from tachycardia to bradycardia real fast. Matter of fact, I scared my new primary care dr when she was watching the pulse oximeter for the first time. My bp was in stroke range and my hr was all over. By the end of the appointment my bp was low. My electrophysiologist said I have an arrhythmia and that my heart races to compensate for my blood pressure. Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 3, 2021 Author Report Share Posted September 3, 2021 11 minutes ago, POTSie78 said: I labile bp. Its all over the place within minutes. My HR also does the same. I can go from tachycardia to bradycardia real fast. Matter of fact, I scared my new primary care dr when she was watching the pulse oximeter for the first time. My bp was in stroke range and my hr was all over. By the end of the appointment my bp was low. My electrophysiologist said I have an arrhythmia and that my heart races to compensate for my blood pressure. oh @POTSie78 glad i am not alone. bp swings are a concern. I have had the stroke bp pressures 225/105 then dropped to 108/80 go figure. While i am not trying to diagnose my issues here. i did dig up a heart strip that shows a heart pause of some sort in the time frame of a bp drop. Starting to think this is why my care team is confused. Quote Link to comment Share on other sites More sharing options...
POTSie78 Posted September 3, 2021 Report Share Posted September 3, 2021 4 minutes ago, MikeO said: oh @POTSie78 glad i am not alone. bp swings are a concern. I have had the stroke bp pressures 225/105 then dropped to 108/80 go figure. While i am not trying to diagnose my issues here. i did dig up a heart strip that shows a heart pause of some sort in the time frame of a bp drop. Starting to think this is why my care team is confused. It's scary stuff and so complicated. Because I have an arrhythmia and test strips that show possible eschemia and borderline abnormal results, I have an implanted loop recorder that monitors me 24/7 with a remote I can identify times I have any kind of episode (similar process as other heart monitors.) My electrophysiologist gets a report every morning. They also have 24 hr blood pressure monitors to help diagnose these issues. Mayo set me up with one but the cuff broke lol so I still have to redo that test. I have not experienced the pauses, I have extra beats. I'm unfamiliar with what they do for that but I would think a halter or bardy monitor would be a good place to start if you haven't had one already. But..I'm no dr either. Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 4, 2021 Author Report Share Posted September 4, 2021 9 minutes ago, POTSie78 said: It's scary stuff and so complicated. Because I have an arrhythmia and test strips that show possible eschemia and borderline abnormal results, I have an implanted loop recorder that monitors me 24/7 with a remote I can identify times I have any kind of episode (similar process as other heart monitors.) My electrophysiologist gets a report every morning. They also have 24 hr blood pressure monitors to help diagnose these issues. Mayo set me up with one but the cuff broke lol so I still have to redo that test. I have not experienced the pauses, I have extra beats. I'm unfamiliar with what they do for that but I would think a halter or bardy monitor would be a good place to start if you haven't had one already. But..I'm no dr either. I did have a ILR implanted. to date it did hit the thresholds set and automatically uploaded the data to the UW Madison University. Still they are on the fence as to the origin of the issues. Yes this stuff is complicated. Quote Link to comment Share on other sites More sharing options...
merkat30 Posted September 4, 2021 Report Share Posted September 4, 2021 This 14 hours ago, POTSie78 said: h @POTSie78 glad i am not alone. bp swings are a concern. I have had the stroke bp pressures 225/105 then dropped to 108/80 go figure. This is me it horrible ⁷ Quote Link to comment Share on other sites More sharing options...
dancer65 Posted September 4, 2021 Report Share Posted September 4, 2021 Yes my BP drops rapidly and then my HR drops too , I will usually faint if I’m not quick enough to lie down then afterwards both my BP and HR are all over the place , I just had to rest and concentrate on breathing and within a couple of hours it will settle down Quote Link to comment Share on other sites More sharing options...
Sushi Posted September 4, 2021 Report Share Posted September 4, 2021 19 hours ago, MikeO said: i did dig up a heart strip that shows a heart pause of some sort in the time frame of a bp drop. Starting to think this is why my care team is confused. That might be a brief arrhythmia—your P wave disappeared for a couple of beats. As I have Afib, I have scrutinized my own ECGs. Pauses of 3 seconds or less are usually not treated, but if they get longer that that, cardiologists take note. I had to have a pacemaker implanted. Hope they figure your data out. Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 6, 2021 Author Report Share Posted September 6, 2021 On 9/4/2021 at 1:33 PM, Sushi said: That might be a brief arrhythmia—your P wave disappeared for a couple of beats Thanks @Sushi I am sure this is a benign blip in my heart beat. Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 14, 2021 Author Report Share Posted September 14, 2021 Update. The abnormal heartbeat that was caught on one of my tilt table tests really started bothering. So had the cardio rehab nurse look at it. She say's it looks like a junctional escape rhythm and not to worry unless i start getting a lot of them and become symptomatic (becoming Brady). Relief i feel much better now. Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 25, 2021 Author Report Share Posted September 25, 2021 dug up more strips from the tilt table test. Hoping someone might recognize this funny looking t wave. I do get a lot of them. Quote Link to comment Share on other sites More sharing options...
Pistol Posted September 25, 2021 Report Share Posted September 25, 2021 @MikeO - the Twave is actually normal, it is the following premature beat that is the abnormality. Since the premature beat appears to have a P-wave it is most likely a PAC Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 25, 2021 Author Report Share Posted September 25, 2021 @Pistolare PAC's anything to worry about? Quote Link to comment Share on other sites More sharing options...
Pistol Posted September 25, 2021 Report Share Posted September 25, 2021 @MikeO - PAC's are simply premature atrial contractions, meaning they are an early beat that originates in the atrium. They are generally considered harmless, just like other premature beats called PVC's. During times of stress ( like a TTT ) we can develop them more easily. They also are pretty common for dysautonomia. I used to get hundreds of PVC's and PAC's when I was not controlled, beta blockers often help. Don;t worry - if there was anything serious with the EKG strip your interpreting cardiologist would have made you aware. Quote Link to comment Share on other sites More sharing options...
Pistol Posted September 25, 2021 Report Share Posted September 25, 2021 @MikeO - Premature Atrial Complexes (PACs) Causes and Treatment (verywellhealth.com) Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 25, 2021 Author Report Share Posted September 25, 2021 @PistolThank You! Quote Link to comment Share on other sites More sharing options...
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