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How are you taking the recent COVID-19 reports?


Ashc
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I am honestly stressed with the news about the vaccines, new variants, and increased cases all around the globe. It's like we're living for this show and we're being played at. I couldn't sleep these past few days and I'm having anxiety attacks. Am I overreacting or what? How are you dealing with all this?? Talk to me, please.

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Hello @Ashc! COVID will definitely be here with us from now on, just like the flu. And - like the flu - we will find ways to live with it. We ( husband, daughter and myself ) are currently in quarantine because we all have COVID. We had chosen no to be vaccinated. I was sick first, with a high fever and sore throat for 3 days and then improved rapidly. NO POTS flare!!!! My PCP contributes this largely to the fact that I am on hydroxychloroquine for auto-inflammation ( contributing factor to my POTS symptoms ). I also made it through unscathed because I have a port and get IV fluids for the POTS. 

My husband was sick and developed some complications from the virus but had antibody infusion and seems to be getting better. My 16 year old daughter ( who also has POTS ) is just fine, a bit tachy and dizzy but otherwise OK. 

I believe that getting vaccinated is the best defense against COVID and complications from COVID, but from what I have seen in my area and state is that vaccinations do NOT provide a definite protection against getting COVID. In our area the ICU and ER are full of people that were fully vaccinated, as well as people that were not. Personally I believe we should get the shot, remain masked and do social distancing but otherwise go about our business. There ARE meds proven to help with COVID infection that have not been as thoroughly advertised as the vaccines. Some studies - for example - say that hydroxychloroquine helps COVID infected people to get better faster and prevent complications, and then there are studies that say it does not. The information out there is seemingly contradictory and hence we should use common sense. 

I know far more POTS patients that did fine with COVID or the shot than people that got sick from them. I never was afraid of getting COVID simply because I have POTS - I am used to flares and have no underlying conditions that would warrant severe complications. And I was right, in my case all was well. 

7 hours ago, Ashc said:

I couldn't sleep these past few days and I'm having anxiety attacks. Am I overreacting or what?

No, I don't think you are overreacting. But keep in mind that there are much, much more positive cases with mild symptoms than there are severe cases. Protecting yourself with shots and basic preventative measures is really all you can do. As we deal with the virus longer and longer more treatments will appear and eventually it may just be like the flu. Remember - the flu once was a pandemic too! Keep positive, breathe deep and live in the present!

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Hi @PistolThank you for your response. That is very encouraging. Thank you. It's good to know that you are all okay. Get well soon. You're right about the flu, and I also thought about that, that COVID will be just like the ordinary illnesses that we have now, but I can't help it as it's getting closer and closer to home. Then there's this fear of the complications it might bring especially for people with medical conditions. But I am relieved with what you said. I am hesitant to get the vaccine but I think you're right. We need it. 

For now, I'd do as you said, do all the necessary precautions and I'll stay away from the TV. I really do hope for the day when this is all totally over. I'm rooting for us all.

2 hours ago, Pistol said:

Keep positive, breathe deep and live in the present!

I will. Thank you

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1 hour ago, Ashc said:

I am hesitant to get the vaccine but I think you're right. We need it. 

Ashc i had the same hesitancy as you are having over getting the vaccine. I finally bucked up and got it back in March (Pfizer) with no bad side effects other than a sore arm.

What got me over the hump was my own experience with vaccines have had them all my life and never got sick from them. for the last 10 years i have been getting a flu vaccine and one year i still came down with it but it only lasted 3 days and only mild respiratory symptoms normally it would have been a 2 week disaster.

I am no medical guru but i suspect the same applies to Covid. After been fully vaccinated gave me some relief and am living my life as i did prior to Covid.

Best Wishes!   

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The news is very overwhelming these days.  I agree it's best to step away and take it is small "doses"!  

You can only do what you can do.  Absolutely the vaccine is the best way out of this at a population level.  I got the Moderna shots in the spring.  I had no significant issues with it--just a day of fever and aches.  I was afraid of a POTS flare up but I didn't have one.

I noticed Pistol mentioned there are many people in the hospital who are fully vaccinated where she is.  This is not the case where I am in Maryland, nor in the state as a whole.  Unfortunately people who are vaccinated can still get infected.  Some do still get very sick but so far this is comparatively rare.  In any case, masks and distancing are still important for this reason and bc anyone under 12 is still not eligible to be vaccinated.

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@Ashc  I understand where you are coming from. My stress level and anxiety are at an all time high.  I am not sleeping. I am afraid of the virus; afraid to get the vaccine. I know people who have had side effects which has made me more nervous to get it even though I want a vaccine and know those sode effects are extremely rare.  Everything makes my POTS worse!  I am thankful you made the post however and everyone here seems very encouraging and hopeful. I just posted to also let you know you are not alone. 

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I will post here what I posted in the other forum. My dysautonomia specialists, both neurology and cardiology, told me that none of their patients who caught Covid (obviously Pistol is an exception) were back to baseline and that none of the ones who had vaccines had flares of their dysautonomia. The side effects are very similar to a flare but they don’t last long generally. I just had my third shot and with all of them I had the expected side effects. Headache was the worst and it was worse from Moderna (my first two shots) than the third (Pfizer) one. I, too, was frightened about getting the vaccines but getting Covid is way, way, way worse than having couple of days of side effects. I have had friends due. I listened to my Drs and not anyone else. I am severely impacted by dysautonomia and have been house bound for 7 years. If I can do it just about anyone can.

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@Pistoli hope you and your family are getting thru the Covid my prayers, I did see my Doc today he warned me about needing a trip to the ER for the next 6 weeks. The hospital is seeing a spike in cases as to the unvaccinated folks. Were i live is rural, just a word of warning. They are starting to shut down services.  

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  • 2 weeks later...

Aschc good to hear that.  The risks associated with the vaccine are very very low for most people, and the risks associated with COVID infection higher to much higher.  It's very difficult to predict who may get very ill due to COVID, including long term COVID.  Many of us on the forum have been vaccinated and the side effects have been generally minimal.

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Even though this issue is politicized.  the medical information/data is quite clear.  The pandemic ebbs and flows. Eventually the Delta variant will slow down.  

 The vaccine isn’t foolproof but largely prevents against developing severe Covid.   It’s like a seatbelt or a bike helmet.  In a bad accident you may die but your odds are much much better with the seatbelt or vaccine.  This was a no brainer for me. I got it on the very first day I was eligible. While COVId in my area is quite low I will still continue to be strategic until the pandemic ends.

Most cities and states provide information in real time on how many cases are active, positivity rate, hospital beds. You can know the likelihood of getting Covid each time you go out.   where I live - northeast - things are under control since people are vaccinated and generally follow the medical guidelines.   I was in a rural area in New Hampshire for sometime where there hadn’t been one case of Covid for weeks.  At that time, I felt pretty free to be normal. At home in crowded New York City, I am more careful,  I have chosen my activities based on facts and circumstances. 

I do fun things, travel/vacation and see family/friends by seizing the moment when COvId risks are low to do more.  I am quite used to staying hone to protect my health.  Whatever activities I like to do will be there on the future when I am ready in unlimited amounts. I’ve done them all before.  It is no big deal to pause.  indoor activities which pose a higher risk are much less appealing at this time.   The thought of being in a room with strangers breathing Covid droplets on me is just gross.  So much to do outdoors while weather is pleasant.  I took two Caribbean trips, with all activities including eating outdoors. I stopped traveling when the Delta variant crisis emerged and I will not visit my immediate family in the states where things are really bad.  (luckily I saw them plenty late last year and earlier this year). Even though we are all vaccinated going to an area in crisis where there are no hospital beds available makes no sense.
 

 

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