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Exciting phone calls!


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So I received some exciting calls yesterday and today. As of today I have a telemedicine appointment with a gifted endorinologist in Jacksonville, Fl and in 2 months I have an appointment  at UAB's autonomic testing clinic! I feel more hopeful. UAB seems like an excellent place to go and they do a lot of extensive autonomic testing which is what I've needed for so long. Just wanted to share the good news. 

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When I read the title, I thought this was going to be about a phone call setting off symptoms. It's unbelievable where only our minds immediately go. 

But that's great news! Congratulations and good luck!

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1 hour ago, MTRJ75 said:

When I read the title, I thought this was going to be about a phone call setting off symptoms. It's unbelievable where only our minds immediately go. 

But that's great news! Congratulations and good luck!

Oh boy, guess it's the wrong title! I'm just tired today. Thanks. It's a step forward and long over-do.  

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I'm so glad to hear you have two positive appointments set up. I do hope they both go well for you.

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On 6/18/2021 at 9:54 AM, CallieAndToby22 said:

So I received some exciting calls yesterday and today. As of today I have a telemedicine appointment with a gifted endorinologist in Jacksonville, Fl and in 2 months I have an appointment  at UAB's autonomic testing clinic! I feel more hopeful. UAB seems like an excellent place to go and they do a lot of extensive autonomic testing which is what I've needed for so long. Just wanted to share the good news. 

When I asked about videos from UAB I hadn’t seen this thread. I poked around and see that UAB now has a clinician trained in autonomic dysfunction—yay! Sounds great. That is a wonderful addition to their clinical services. Keep us posted.

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On 6/20/2021 at 11:49 AM, Sushi said:

When I asked about videos from UAB I hadn’t seen this thread. I poked around and see that UAB now has a clinician trained in autonomic dysfunction—yay! Sounds great. That is a wonderful addition to their clinical services. Keep us posted.

Awesome. I didn't really know to be honest I just did a lot of searching and found out they had a new autonomic testing lab. However the results will go back to my local neurologist and he doesn't know anything about dysautonomia. 

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16 hours ago, CallieAndToby22 said:

However the results will go back to my local neurologist and he doesn't know anything about dysautonomia. 

Maybe you could call the department at UAB and ask if they will be sending a report and interpretation of your test to your local neurologist? The interpretation and analysis is almost the most important part of the test in my experience.

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5 hours ago, Sushi said:

Maybe you could call the department at UAB and ask if they will be sending a report and interpretation of your test to your local neurologist? The interpretation and analysis is almost the most important part of the test in my experience.

Yea they already said they would be sending it to the referring physician. I just need to find an autonomic specialist. We're moving partially so I can get actual medical care. 

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On 6/22/2021 at 3:21 PM, CallieAndToby22 said:

ea they already said they would be sending it to the referring physician. I just need to find an autonomic specialist. We're moving partially so I can get actual medical care. 

Will you be near enough to go to the UAB specialist if you find his report to be comprehensive?

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