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What Supplements do you take?


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Hi Everyone!

    I just had a question about some good supplements to take for dysautonomia. I get really achy legs and they get crampy, and I have heard this is a magnesium deficiency. So I take about 750 mg grams of magnesium a night, but I still don't get the crampy achy feeling taken away. My Mom suggested I eat more potassium, so I'll try that. But I just wanted to know what you guys take to help with pain, immune system, digestion, etc. Thanks!

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@Knellie - you can get enough potassium and magnesium from a healthy diet, especially bananas, I eat one every single day. In the way of supplements dysautonomia patients have to be careful - we are usually extremely sensitive to meds, even supplements. What many dys-sufferers seem to lack, however, are Vit D, Vit B12 and Ferritin. I was low in all three at the onset of my illness and supplementing the deficiencies has helped with energy and fatigue. 

Another supplement I take regularly and tolerate well is Turmeric, I cannot take many NSAIDS but have a lot of issues with inflammation. Turmeric works really well for me for joint pains etc. I cannot take Steroids for arthritic flares, so it works well for that. And for digestion I drink ginger tea as well as chamomile tea for sleep. 

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I agree with @Pistol that supplements and even vitamins can have serious side effects! I think I've had worse reactions to supplements than actual medication. With that being said things that have been pretty safe for me are: Vitamin D3 and Omega 3 gummies that also have DHA, EPA, and a bit of turmeric. Both vitamin D3 and omega 3 fish oils increase cerebral blood flow but just make me feel better. I take a magnesium supplement at night as well and it helps with constipation. I have the MTHFR genetic mutation and I was prescribed L methyl folate, methyl B12, and niacin. I can't take normal B12 I have a weird reaction to it and makes me tired. Niacin can cause flushing but I bought a kind that doesn't do that but niacin is also supposed to increase cerebral blood flow. I wouldn't recommend that latter supplements like L methyl folate until you are tested for the deficiency and/or mutation. Vitamin C makes me really really sick. It's really unfortunately a trial and error thing and finding the right dosing and we all react differently. 

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Hi! I take a multivitamin to cover the bases and add in extra VD (I'm usually deficient), VC for immune support, a probiotic that also has zinc and other gut support, Circumin for inflammation, and magnesium to help me relax and ease my chest pain. I also drink herbal teas like Throat Coat, ginger, peppermint, and chamomile. I've tried other things over the years, but these are the ones I've stuck with :) 

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