Knellie Posted April 24, 2021 Report Share Posted April 24, 2021 Hi Everyone! I just had a question about some good supplements to take for dysautonomia. I get really achy legs and they get crampy, and I have heard this is a magnesium deficiency. So I take about 750 mg grams of magnesium a night, but I still don't get the crampy achy feeling taken away. My Mom suggested I eat more potassium, so I'll try that. But I just wanted to know what you guys take to help with pain, immune system, digestion, etc. Thanks! Quote Link to comment Share on other sites More sharing options...
Pistol Posted April 25, 2021 Report Share Posted April 25, 2021 @Knellie - you can get enough potassium and magnesium from a healthy diet, especially bananas, I eat one every single day. In the way of supplements dysautonomia patients have to be careful - we are usually extremely sensitive to meds, even supplements. What many dys-sufferers seem to lack, however, are Vit D, Vit B12 and Ferritin. I was low in all three at the onset of my illness and supplementing the deficiencies has helped with energy and fatigue. Another supplement I take regularly and tolerate well is Turmeric, I cannot take many NSAIDS but have a lot of issues with inflammation. Turmeric works really well for me for joint pains etc. I cannot take Steroids for arthritic flares, so it works well for that. And for digestion I drink ginger tea as well as chamomile tea for sleep. Quote Link to comment Share on other sites More sharing options...
CallieAndToby Posted April 25, 2021 Report Share Posted April 25, 2021 I agree with @Pistol that supplements and even vitamins can have serious side effects! I think I've had worse reactions to supplements than actual medication. With that being said things that have been pretty safe for me are: Vitamin D3 and Omega 3 gummies that also have DHA, EPA, and a bit of turmeric. Both vitamin D3 and omega 3 fish oils increase cerebral blood flow but just make me feel better. I take a magnesium supplement at night as well and it helps with constipation. I have the MTHFR genetic mutation and I was prescribed L methyl folate, methyl B12, and niacin. I can't take normal B12 I have a weird reaction to it and makes me tired. Niacin can cause flushing but I bought a kind that doesn't do that but niacin is also supposed to increase cerebral blood flow. I wouldn't recommend that latter supplements like L methyl folate until you are tested for the deficiency and/or mutation. Vitamin C makes me really really sick. It's really unfortunately a trial and error thing and finding the right dosing and we all react differently. Quote Link to comment Share on other sites More sharing options...
Karen Elaine Posted April 26, 2021 Report Share Posted April 26, 2021 Hi! I take a multivitamin to cover the bases and add in extra VD (I'm usually deficient), VC for immune support, a probiotic that also has zinc and other gut support, Circumin for inflammation, and magnesium to help me relax and ease my chest pain. I also drink herbal teas like Throat Coat, ginger, peppermint, and chamomile. I've tried other things over the years, but these are the ones I've stuck with Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.