Knellie Posted March 31, 2021 Report Share Posted March 31, 2021 Hey Everyone- I had a quick question. I have had palpitations for about a year, as is common with Dysautonomia. At the beginning of the year I had an EKG and a Holter monitor done, just to make sure that nothing was seriously wrong. My doctor diagnosed me with Premature Ventricular Contractions, but said that it was fairly normal and didn't think much of it. My Holter monitor results said that I had 1164 premature beats in 24 hours, which seemed like a lot to me but I guess wasn't a big deal. I was just wondering if any of you have specific diagnoses for your palpitations? I feel like they don't happen in specific patterns they just happen and it feels weird. It isn't my chief complaint but I was just wondering if any of you have been diagnosed with the same thing and how you manage it. Quote Link to comment Share on other sites More sharing options...
Alex D. Posted March 31, 2021 Report Share Posted March 31, 2021 My 24 hour holter monitor showed 22,000 PVC’s and PAC’s. My cardiologist said that they weren’t in themselves dangerous, but I insisted that we try and treat them. After several months trying different medications and discussions about an ablation we tried Propafenone. It all but cured the ectopic beats, a no more than 1-2 an hour. Hope you find a solution, it’s a real pain living with the etopic beats! Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted March 31, 2021 Report Share Posted March 31, 2021 Same for me, I have a ton, and the electrophysiologist gave me options to treat with antiarrhythmics, ablation, or nothing. I am such a mess that I’m going with nothing for now. They bother me (I have a lot of bigeminy) but he said they are okay. I WOULD love to know where they’re coming from. Heck I’m only 40. Quote Link to comment Share on other sites More sharing options...
Pistol Posted April 1, 2021 Report Share Posted April 1, 2021 @Knellie - I too used to get tons of PVC's and PAC's as well as tachycardia. Since Carvelidol and Cardizem therapy I no longer have them, and the tachycardia is controlled as well. I take other POTS meds as well as IV fluids, it seems to be the combination that works, not any one med in particular ( although the beta blocker and calcium channel blocker seem to do the trick with palpitations ). @RecipeForDisaster - the PAC's and PVC's for POTS patients usually are caused by the ANS dysfunction, as well as the tachycardia ( obviously ). It is the sympathetic NS that makes the heart so irritable. Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted April 1, 2021 Report Share Posted April 1, 2021 I’m scheduled for a diltiazem trial (for cerebral perfusion) along with my beta blocker (I don’t know if that has made them worse, but it hasn’t helped... it has helped enough other stuff, though!). Maybe it will help with this, too! Quote Link to comment Share on other sites More sharing options...
Pistol Posted April 1, 2021 Report Share Posted April 1, 2021 I bet the Diltiazem helps! I started out on 30 mg 2xday and gradually increased to the extended release 240 mg. In the summer I go down to 180 mg b/c the heat causes my BP to drop. Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted April 2, 2021 Report Share Posted April 2, 2021 My BP is so low and I also need metoprolol... I did not do well on diltiazem alone. We’ll see! I am starting on 30mg too. Quote Link to comment Share on other sites More sharing options...
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