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I mentioned reading something centered on treating the Vagus nerve in another thread recently. That's from this article: 

https://www.faim.org/fibromyalgia-chronic-fatigue-and-multiple-chemical-sensitivities-a-unified-hypothesis

And then, just today, Dysautonomia International posted this Vagus nerve study on their FB page: 

https://bmjopen.bmj.com/content/11/1/e038677.long?fbclid=IwAR2JiWaE7A3Ft3-SwqNGHKQzoxRN1hfYMnTqOV2tlCSaEYY7U1ibvAPIRO4

It almost sounds counter-productive when everything feels like it's going nuts inside you and the recommended treatment is further stimulation. 

This would be great news though...if I could find someplace that offers the treatment at a reasonable cost. 

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I'm just hoping other people will be the guinea pigs and come back with good news. 😄

Ironically, decided to start watching the 2020 Dysautonomia Conference videos today and the first presentation is about vagus nerve manipulation. Turns out they've been turning autoimmune diseases off with this process for the last decade. Yet, we sit here and suffer the way we do without doctors or insurance companies even giving us such options.

It's a bit infuriating how slowly medicine works. I understand the safety protocols, but when quality of life is so low in people, sometimes the potential rewards outweigh the risks, especially when the drug therapies currently being used have potentially damaging side and long term effects anyway. 

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5 hours ago, MTRJ75 said:

I understand the safety protocols, but when quality of life is so low in people, sometimes the potential rewards outweigh the risks, especially when the drug therapies currently being used have potentially damaging side and long term effects anyway. 

I soo agree! This was the case for me: they kept ordering IV fluids temporarily for flares b/c they worked so well, but they refused to order a port so I could get them every week. The risks of infection and blood clots were too high. When my PCP finally agreed to the port and ordered home infusions I became a changed person. My quality of life increased immediately, and I have been so much better for the past 2 years b/c of the fluids! I never responded too good to meds, although they did help, just not enough. With the IV fluids I am well ( as long as I live within my limits, still am housebound but no longer have seizures or pass out ). 

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Thank you for posting this. I found the article and the DI conference presentations very interesting and hopeful. I was going to get a Parasym device https://www.parasym.co/parasym-device-transcutaneous-vagus-nerve-stimulation.html the next time my husband went to the UK (they don’t ship to the US) but covid hit 2 weeks before his trip. I did buy this in the US https://vagus.net/ but it only stays on for 15 minutes at a time and you can’t control output much and it irritates my skin. It might help a bit but I can’t wear it long enough to really know. I do know there has been discussion on here about vagus nerve stimulation before. 

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Thank you @p8d

Unfortunately, at $300+ with shipping, that device doesn't seem like something I could just buy and try on a whim. My mother used to work for a chiropractor (many of them in fact) and I have a home TENS unit, but I haven't been able to find ear clips that fit the unit. 

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Thanks for sharing . After reading this I reallly would like to buy one of these to try , maybe once we get some normality back from this pandemic and our lockdowns and when I am working again . 
I did look up for practitioners offering treatment but they are all 3 hour drive away couldn’t cope with that once a week ! 
 

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I have the ear clips bought from a previous thread recommendation. However the only thing I have to use them with is what is probably a glorified tens unit but it's called an inferential unit. It's called the IF-4000. I've actually had a tens unit but this one works better for back and spasm problems. I've looked into scientific articles for the settings to use for this unit with my ear clips but it's seems extremely complicated, even with my science background. Is there anyone with a protocol they find useful, particularly with the IF-4000 unit I have? Any help would be so much appreciated. I feel my sympathetic overstimulation is getting worse by the day and I don't know where this ends up if it continues. Feel free the PM me if you don't feel comfortable sharing settings publicly.

 

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Just a note: some of us, probably the minority, have a vagus nerve that is too activated. I have tried to find out how a vagus nerve stimulator would affect those like me? My parasympathetic system is dominant.

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  • 4 weeks later...
On 2/14/2021 at 11:17 PM, p8d said:

@dancerI believe that in the UK you can rent Parasym to try it out before buying. As far as I know no prescription is required.

Never seen one of these before. Do you know what benefits you can get from this device? I'm in the UK so wouldn't mind looking into this.

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