Terrib Posted November 27, 2020 Report Share Posted November 27, 2020 Hi! I am new here and so glad I found this! I was recently diagnosed with RCVS and had the scariest last couple of months. I want to go into my story but want to make sure I am at right place? Trying to navigate this site but so glad to find info on this! Thanks for any advice on how to use well! Happy Friday! Terrib. 🤗 Quote Link to comment Share on other sites More sharing options...
Pistol Posted November 28, 2020 Report Share Posted November 28, 2020 Hello @Terrib - welcome to the forum! By RCVS - do you mean reversible cerebral vasoconstriction syndrome? I am not familiar with this disorder but after scanning through a few sites I can see that the symptoms can be similar to those we experience from dysautonomia. If you don;t mind - why don't you tell us a bit about your story, so we can see how we relate and if there are things we can learn from each other? I have Hyperadrenergic POTS, which causes vasoconstriction all over my body, including cerebral loss of circulation, from excessive adrenaline levels. Adrenaline is a vasoconstrictor. When the vessels to my brain constrict so much that there is no circulation I take autonomic seizures. I also have Raynauds disease and Prinz metal angina - both caused by too much vasoconstriction. So as you see - it sounds like some symptoms could be similar! I am looking forward to hearing more from you, and I am glad you found us. Quote Link to comment Share on other sites More sharing options...
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