Muon Posted October 25, 2020 Report Share Posted October 25, 2020 (edited) Very nice guide. Postural Tachycardia Syndrome A Concise and Practical Guide to Management and Associated Conditions Article has been placed in the link directory of the information resources tab: https://www.dinet.org/links https://www.dinet.org/links/postural-tachycardia-syndrome-a-practical-guide-to-management-and-associated-conditions-r270/ Edited November 8, 2020 by Muon Quote Link to comment Share on other sites More sharing options...
Pistol Posted October 25, 2020 Report Share Posted October 25, 2020 Thanks @Muon! Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted October 26, 2020 Report Share Posted October 26, 2020 This is great and seems to be relatively new too! I wonder if you can get a hard copy anywhere. Quote Link to comment Share on other sites More sharing options...
H. Potsland, Oregon Posted October 28, 2020 Report Share Posted October 28, 2020 Thank you @Muon. The movement from waving girl on the lower left corner triggered my symptoms. Ugh. Anyone else? FYI: if you click on she goes away and a page about her opens. Quote Link to comment Share on other sites More sharing options...
cmep37 Posted October 28, 2020 Report Share Posted October 28, 2020 Thanks for the link @Muon - really useful information! And thanks very much for the tip about getting rid of the waving girl @H. Potsland, Oregon- it was bugging me too! Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted November 5, 2020 Report Share Posted November 5, 2020 This has been an incredible resource. I've printed out several pages that I'm going to start taking to doctor's appointments with me and I'm only up to around page 50. Can we get this post pinned somewhere so it doesn't get lost in the shuffle. Quote Link to comment Share on other sites More sharing options...
Ashc Posted November 6, 2020 Report Share Posted November 6, 2020 This is a great info. Thank you. Kindly pin this post. Quote Link to comment Share on other sites More sharing options...
Muon Posted November 8, 2020 Author Report Share Posted November 8, 2020 I placed it within a pinned thread on POIScenter. Ignore the POIS stuff, scroll down to other conditions, it's under the '1' next to POTS. It contains more useful links: POIS paper treatment summary Quote Link to comment Share on other sites More sharing options...
Pistol Posted November 8, 2020 Report Share Posted November 8, 2020 @MTRJ75, @Ashc, @Muon Please note: the article is now pinned as a link under the Information Resources tab of this website. Quote Link to comment Share on other sites More sharing options...
Muon Posted November 8, 2020 Author Report Share Posted November 8, 2020 8 hours ago, Pistol said: @MTRJ75, @Ashc, @Muon Please note: the article is now pinned as a link under the Information Resources tab of this website. Thanks. Nice tab btw. https://www.dinet.org/links https://www.dinet.org/links/postural-tachycardia-syndrome-a-practical-guide-to-management-and-associated-conditions-r270/ Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted November 11, 2020 Report Share Posted November 11, 2020 Has anybody had any of the "Additional Autonomic Tests" (p. 53) done? I'm not sure I even understand most of it, but seems like something neuros/cardios might not be equipped to do. Quote Link to comment Share on other sites More sharing options...
cmep37 Posted November 13, 2020 Report Share Posted November 13, 2020 The only one that I've had was the massage of the carotid sinus which the doctor did before the TTT. He was a junior doctor and said to me, I need to do this test but it might trigger a stroke - is that OK? Luckily I'd read up on it and knew the risks of a stroke were tiny but I know if he'd told my Mum that she'd have been out of there like a shot! The technician rolled his eyes and apologised when he'd left - he said he would have to have a talk to him about scaring the patients unnecessarily! Quote Link to comment Share on other sites More sharing options...
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