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Discontinuing Meds for Autonomic Testing


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I have autonomic testing at the end of the month . I am so grateful I have the appointment, yet my biggest concern is I have to discontinue meds 2 days prior. I’m on low doses 5mg of Midodrine 3xs a day and 5 mg of propranolol anol once daily it was 10 mg and I am slowly tapering for my appointment ( this was prescribed for anxiety from my psychiatrist for anxiety, not for lowering heart rate ) .My electrophysiologist who first diagnosed me prescribed the midodrine. I am going to call my autonomic specialist today about the meds and my concerns, but I wanted to ask everyone what your experiences were when discontinuing meds before tests. Did you have to stop your meds prior? What are some questions/ concerns I could ask my specialist about discontinuing the meds and exacerbating symptoms or a crash ? 
 
So concerned about having a crash , since I have been doing so well. 
 

 

 

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@HCD77 It has been many years since my last TTT and I was only on 2 meds back then. I had to stop the beta blocker 3 days prior and was very weak and fainty from it. Of course I passed out during the test. I think it is necessary to stop them b/c my sister recently had autonomic testing done without stopping any meds and passed everything with flying colors - despite having dysautonomia. So not stopping can show a false-negative result. But you have to be aware that you will probably have a flare from it and plan the following week or so accordingly. I always felt bad after the tests. Good Luck!!!

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I wasn't on meds for my test. My best advice is go in for the test and crash in their office. Don't be afraid. They do this for a living and they can document it. Bring someone with you to drive you home and plan to be out of commission for at least the rest of the day. They need to know what exactly happens. They need to know how bad it is. I started getting help when doctors started having to pick me up off their floor. 

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