angelloz Posted September 20, 2020 Report Share Posted September 20, 2020 Hello to all, I was diagnosed with autonomic dysfunction around age 50. I won't go through the horrid list of symptoms as you all know them:). After about 5 years my health improved greatly. Best thing for me was salt and fluid loading. I am now 61 and things are suddenly awful. BP drops are back, temperature dis-regulation and now nothing is moving through my stomach, trying to stay hydrated and barely eating. I have upcoming tests. The one change in my life was starting the NEW oral CGRP medication Ubrelvy for my migraines. It was helping with that and I took it for several months. I have now stopped . I am afraid it has wrecked my body again. It is so new I seriously doubt all side affects will be known for years. I'm not sure what I am asking but I am so scared I ruined my health. I don't think my body can fight through this again. Sigh.... Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 21, 2020 Report Share Posted September 21, 2020 So sorry. I've had two flare ups (bad) in past 2+ yrs after going 15 yrs with minimal symptoms. I really don't know what caused these--low B12, stress, perimenopause?? My dr says none of the above--he thinks it's a reaction to inflammation from viruses in both cases. In both of these bad flare ups I was sick for about 2 months and then it resolved back to my baseline. I know everyone's situation is different but I would definitely not assume your health is ruined. If you got better before you most likely will again. If fluids helped before, maybe IV fluids would be a good idea for you? Quote Link to comment Share on other sites More sharing options...
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