Terrible all over body aches, is this a POTS symptom ?

[HCD77]

Does anyone have excruciating painful body aches and tenderness sometimes? It’s not all the time but it seems like after I sit at a computer or maybe I’m doing too much. I was just wondering if anyone else has this symptom and what relieves it? I’m in real pain and I was doing real well even walking. I see a specialist next month. I’m on a low dose Midodrine and propranolol and normal non pharmaceutical protocol. 

[POTSius]

I get a lot of body aches and have found self massage very helpful

I massage for less than a minute maybe a dozen or so times a day, with gentle/firm circular motions. After doing this a week or two, the pains typically greatly improve and need far less massage in the future.

I also think NSAIDs help

I am not sure if it is from my POTS, or MCAS or something else

 

[MomtoGiuliana]

When I am in a flare I have body aches.  Sometimes it can really be severe.  I think also when I am in a flare I am more sensitive to pain.

Does salt and fluid help?  Usually that helps me to feel a little better at least.

[Guest KiminOrlando]

Be sure to tell your doctor. Autoimmune diseases go hand in hand with dysautonomia. It could be that, but doesn't have to be. I have Rheumatoid-arthritis and Lupus. They call it Undifferentiated Connective Tissue disease or Mixed Connective Tissue disease. 

[HCD77]

I see my specialist at the end of October for the first time. Thank you so much for your comments. I hope I will have a better of quality of life soon. 

[Knellie]

   I get body aches every night. Although it varies per person, you may have a magnesium deficiency. That is what it is for me. Once I take magnesium, it tends to feel better. I usually take 400-800 milligrams per night. 

     I am not sure if this will help you or not. I hope you feel better soon!