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Any Great Dysautonomia Doctors in NY?


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Hi all. I know there's a list on the site for many doctors in the area. However, I'd like to hear any personal experiences as these lists can still tend to be hit or miss.

I recently moved up to NY from TX right after finishing all my autonomic testing. I'm hoping to find a great doctor up here. I'm upstate but am happy to travel to NYC of needed.

Would be great to get some tips on who to go to here :)

Thanks!

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Hi @autonomicreg I’m in Texas , May I ask where did you get your autonomic testing? I am awaiting a referral for Southwest Medical Center in Dallas. I did see a video called Changes on the dinet website .  The doctors name is Svetlana Blitshteyn. I was really impressed . If I were in  NY I would make an appt. with her office. I think she’s in Buffalo. Best of Luck! 

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3 hours ago, Lisa C said:

Hi @autonomicreg I’m in Texas , May I ask where did you get your autonomic testing? I am awaiting a referral for Southwest Medical Center in Dallas. I did see a video called Changes on the dinet website .  The doctors name is Svetlana Blitshteyn. I was really impressed . If I were in  NY I would make an appt. with her office. I think she’s in Buffalo. Best of Luck! 

Hi Lisa. I got my autonomic testing done at The Heartbeat Clinic in McKinney with Dr. Suleman. He was amazingly thorough - I must have had like 20+ tests done there. It's unfortunate I had to move right after he just started treatment with me. But I would recommend him without hesitation. No referral required, but I don't believe he's seeing new patients at the moment (due to the pandemic) if I remember correctly. This might have changed though. He may come off a bit rude to some people, as he doesn't have the best bedside manners. But I don't think this is intentional. He's a brilliant guy and really takes his work seriously - not all smiley happy making you "feel cared about" but not actually helping. I've went to enough doctors who had the best personalities in the world but didn't help me at all. So his serious attitude was refreshing for me. 

I've heard polarizing things on Dr. Blitshteyn. Seen great reviews on her and her practice...but also saw she's done some fairly questionable things like randomly shutting down her practice without telling patients for a whole year. And also she doesn't take insurance anymore which always makes me a bit cautious (I know this doesn't make her a bad doc, but I've had some crappy experiences with docs I've needed to pay out of pocket for in the past). 

But I'll look into it more. Seems like most New Yorkers want to keep their doc a secret 😜 Thanks!

 

 

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Thank you so much @autonomicreg !! I had a telemedicine appt with Dr. Suleman several months ago he encouraged me because of the pandemic to just stay with my electrophysiologist here and not come to Dallas where the cases are surging , but I have an appt with him in person in October. Hearing your experience makes me feel very hopeful. I would have already seen him but the COVID has really made getting medical care a real challenge. 

I sure hope you find a doctor that helps you as much as Dr. Suleman did. Since you have had all the testing , would you be able to just continue with him using Telemedicine until you find a doctor in NY? 
 

I hope you get the care you need. 

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4 hours ago, Lisa C said:

Thank you so much @autonomicreg !! I had a telemedicine appt with Dr. Suleman several months ago he encouraged me because of the pandemic to just stay with my electrophysiologist here and not come to Dallas where the cases are surging , but I have an appt with him in person in October. Hearing your experience makes me feel very hopeful. I would have already seen him but the COVID has really made getting medical care a real challenge. 

I sure hope you find a doctor that helps you as much as Dr. Suleman did. Since you have had all the testing , would you be able to just continue with him using Telemedicine until you find a doctor in NY? 
 

I hope you get the care you need. 

No problem :)  And yeah, the pandemic really messed everything up haha. Hold out till October, it'll be worth the wait. (little secret: There's a waitlist you can opt into to be seen earlier when there are cancellations. I was supposed to wait 4 months to see him, but ended up getting in within 4 weeks.)

And yes, I've continued doing telemedicine with him. My case is unfortunately a little more complex than disorders like POTS - I'm in my early 20s with Orthostatic Hypotension that was rapidly brought on by some serious infections I had over a year ago - so we're slowly transitioning me to get the care I need up here so I can continue being seen by specialists in person. 

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