merkat30 Posted August 11, 2020 Report Share Posted August 11, 2020 I cant stand without flushing I have mast cell activationn syndrome is it of this or Hyperadrenergic dysautonomia? Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 11, 2020 Report Share Posted August 11, 2020 Dear @merkat30 - I have HPOTS and do not have flushing when standing, but I know it is a common symptom of MCAD. Quote Link to comment Share on other sites More sharing options...
KiminOrlando Posted August 12, 2020 Report Share Posted August 12, 2020 I stand for long and I am soaking, I mean dripping, wet. My hair looks like I just came in from the rain. I just got back from the grocery store. Everything I wore is soaked, my makeup ran and my hair is still wet. I've been home for 3 hours. If you find a solution to this, please tell me. People look at me and ask me if I'm ok all the time. Quote Link to comment Share on other sites More sharing options...
KiminOrlando Posted August 12, 2020 Report Share Posted August 12, 2020 I drank 3 bottles of water. I will still be dehydrated tomorrow. Quote Link to comment Share on other sites More sharing options...
merkat30 Posted August 12, 2020 Author Report Share Posted August 12, 2020 It so horrible isn't it I feel dirty sweaty soon I get out the shower 🥵😪😪😪 Quote Link to comment Share on other sites More sharing options...
KiminOrlando Posted August 12, 2020 Report Share Posted August 12, 2020 Yes. I am totally wiped out from going to the store and I still need a shower before bed. I didn't wash my hair. Didn't have the energy. Have to do that today. People act like all I have to do is run to the store. No, it is a huge ordeal to get me back to 'normal'. Quote Link to comment Share on other sites More sharing options...
cmep37 Posted August 12, 2020 Report Share Posted August 12, 2020 I'm not hyper POTS but do flush and sweat when standing although not to the degree you describe. I have found Driclor a great help in helping my armpits, back and under boobs stay dry! I started putting it on every day, I can now manage with just once a week. It does sting and itch a little when you put it on but is worth it IMO. Quote Link to comment Share on other sites More sharing options...
BeckyJ Posted August 15, 2020 Report Share Posted August 15, 2020 @KiminOrlandoI I was searching for a dysautonomia provider in South Carolina for my daughter. Do you still go to MUSC? I saw a post where you saw Dr. Glenn. I saw he is retired. Is there someone else there? Quote Link to comment Share on other sites More sharing options...
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