Hyper pots and sweating ?

[merkat30]

I cant stand without flushing I have mast cell activationn syndrome is it of this or Hyperadrenergic dysautonomia?

[Pistol]

Dear @merkat30 - I have HPOTS and do not have flushing when standing, but I know it is a common symptom of MCAD. 

[Guest KiminOrlando]

I stand for long and I am soaking, I mean dripping, wet. My hair looks like I just came in from the rain. I just got back from the grocery store. Everything I wore is soaked, my makeup ran and my hair is still wet. I've been home for 3 hours. If you find a solution to this, please tell me. People look at me and ask me if I'm ok all the time.

[Guest KiminOrlando]

I drank 3 bottles of water. I will still be dehydrated tomorrow. 

[merkat30]

It so horrible isn't it I feel dirty sweaty soon I get out the shower 🥵😪😪😪

[Guest KiminOrlando]

Yes. I am totally wiped out from going to the store and I still need a shower before bed. I didn't wash my hair. Didn't have the energy. Have to do that today.

People act like all I have to do is run to the store. No, it is a huge ordeal to get me back to 'normal'.

[cmep37]

I'm not hyper POTS but do flush and sweat when standing although not to the degree you describe.  I have found Driclor a great help in helping my armpits, back and under boobs stay dry!  I started putting it on every day, I can now manage with just once a week.  It does sting and itch a little when you put it on but is worth it IMO.

[BeckyJ]

@KiminOrlandoI I was searching for a dysautonomia provider in South Carolina for my daughter. Do you still go to MUSC? I saw a post where you saw Dr. Glenn. I saw he is retired. Is there someone else there?