Sam4877 Posted June 26, 2020 Report Share Posted June 26, 2020 Hi guys, I have been consistently getting a resting BP of 122/77 (sitting BP) since a very long time and since the past few weeks it has changed to 135/91 (sitting BP) and standing BP which use to be 135/92 to 111/77. I was suspected to have hyperadrenergic POTs and always had a high standing bp and normal sitting bp. Has anyone else experienced something similar where the BP's flip sides? My HR still goes up which is consistent with POTS. Quote Link to comment Share on other sites More sharing options...
RobinB Posted July 16, 2020 Report Share Posted July 16, 2020 Mine has flipped, but the other way. When I was first diagnosed it went from normal to 70/40 standing for 10 minutes. Longest 10 minutes of my life! Now mine stays pretty consistent (although I often can’t stand long enough to test it) with just the diastolic rising a bit and making my pulse pressure narrow. It feels just as awful either way. I haven’t seen a specialist since 2016 so I’m hoping that I can soon... to see if there are any notable changes that might lead us in the right direction. Hang in there! I know symptoms for me can change from minute to minute. Sometimes a HR of 115 feels awful and 140 feels bearable. It’s so confusing. Quote Link to comment Share on other sites More sharing options...
Pistol Posted July 16, 2020 Report Share Posted July 16, 2020 @Sam4877 - I have HPOTS and my BP and HR used to soar whenever I stood. Since I am fairly stabilized on medications, IV fluids and limitations I uphold my BP now tends to run on the low side. Currently I am in a flare and am suffering from fainting and other symptoms caused by LOW BP, and I am thinking it has to do with the heat. My autonomic specialist always told me that HPOTS can change over the years because The ANS can dysfunction in many ways, and with medications and simply age related changes in our bodies the ANS will adjust and compensate. For a while I was in a really bad boat - high BP when lying down and low BP when standing up. Today - as I said - it is the orthostatic hypotension that causes me problems ( I also have NCS ). Quote Link to comment Share on other sites More sharing options...
toomanyproblems Posted July 18, 2020 Report Share Posted July 18, 2020 Mine flips as you describe and goes back again over fairly short periods of time. I have hyperPOTS by BP and HR. But I can have orthostatic hypotension on any given day. Usually at night. Quote Link to comment Share on other sites More sharing options...
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