Thoughts on Exosome (formerly Stem Cell) treatment?

[MTRJ75]

There's a bit of a backstory here, so feel free to skip to the end if it doesn't interest you, but a little over two years ago, I went to a consult with a very successful Exosome therapy doctor. Exosomes are the next evolution in Stem Cell therapy. The short version is that he found them to be more potent with fewer drawbacks. 

At the time, I had believed my biggest issue was autoimmune (Sjogren's). I had been having chest pains and tachycardia, but I'd not even heard the term dysautonomia yet and no doctors had made the connection to POTS. He had been having great success with Lupus and Diabetes though an IV delivery method. It took me nearly a year to raise the money to try this (though several other consults I went to mentioned that his prices were very fair), but when I went back to him, with more knowledge (and symptoms) from the dysuatonomia aspect of it, he suggested that we may need to attack the nervous system directly as well, which would be an additional treatment and more expensive. 

I decided that if my nervous system issues were stemming from my autoimmune problems (despite never testing positive via bloodwork), perhaps we should just go with the original treatment, which he was still suggesting in addition to the intrathecal (nevrous system) delivery method. He also mentioned that some patients needed to come back for a second round about six months later. 

He proceeded to show me videos of spinal injuries he had treated where people were getting out of wheelchairs, I found other cases, including Parkinson's, successfully treated by him on my own. 

Unfortunately, my single IV treatment didn't do enough. There were certainly some benefits (no rashes last fall for the first time in five years) and some long lasting aches and pains cleared up, but it just wasn't enough to clear my most serious problems and I didn't have enough funds to go back for a second shot last summer. 

The last time I went to see him for a follow up last summer, he had mentioned that he was treating IBD patients directly through the digestive system and had been noticing that these patients saw neurological improvements as well. He therefor recommended intrathecal (spinal delivery that goes directly to the brain) + delivery directly through the stomach.

From the outside material I've been reading, it is believed that exosomes can reprogram cells to act correctly, which is where the healing comes from. So while most of his neurological successes seem to come from injury to the spinal column or brain, I have wondered at the level of impact it would have on brain dysfunction (as in POTS/dysautonomia). 

He hasn't mentioned treating POTS/dysautonomia directly, but does feel it would be able to get the brain sending the right messages again and he has treated neuropathy several times successfully. 

This may be much about nothing as I still don't have the funds for this, but if I did, I feel like this might be my last best chance. Of course, there have only been single case studies done on this because nobody is funding long term studies. It would hurt big pharm, so they're trying to shut these types of things down if anything. 

I'll leave the one case report I keep coming across here: 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5346911/

And here is a massive amount of information on the applications of the therapy overall, though it doesn't directly mention dysautonomia: 

https://www.comfortcompassion.com/wp-content/uploads/2018/10/Therapeutic-Utility-of-Exosomes.pdf

Thoughts or even dare I say experiences? 

[Sushi]

On 6/23/2020 at 12:19 PM, MTRJ75 said:

I didn't have enough funds to go back for a second shot last summer. 

That is an interesting article. I wish that it were less expensive and that you could try a second shot. Do you mind telling us how much this therapy costs? 
 

[MTRJ75]

As I understand it, prices for different delivery methods differ throughout the country or even the world. I've been told that the guy I used (without revealing more than I'm allowed) was very reasonable in his prices. I've been told this by his competitors. 

The IV treatment I got cost $3K, but since I paid all at once, he took $500 off. 

The second treatment he offered I think was an $8K intrathecal delivery along with the $4K stomach treatment, but he was willing to work with me and gave me a price much lower than $12K, which he asked me not to tell anyone about. The funny thing, is that he had a very loud personality, but he was the smartest doctor I've ever been around and really wanted to help people. 

[Holly alek]

Can I PM you for his contact? I want to try stem cell for my dad but don't know where to start my research - who is reputable and costs.