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Hey lovely people 

BP this morning on sitting was 88/58 and my pulse raises by 32 on standing but BP barely changes. It's always been low but not normally as low as this. 

I don't know if it's a lockdown sedentary thing but I've been really struggling the past two months with huge crashes after I eat - can't move for 4 hours and go into a practically passed out sleep - then I pop out of it fatigued but very strung out. I'm now eating a few forks of food then leaving it a while, and recently am lying while eating and making sure I don't attempt food if I've been on my feet or sitting for a while. Lie and rest first. Am grain and carb free or else it's impossible - and I get heavy fatigue the next day too. 

Does anyone else find that lying down with your legs raised before eating - nibbling to be more realistic - helps? Wondering if there are any other tips at all ? It can all go wrong so quickly. 

I am drinking litres of water a day. Salt is 10g a day. I'm speaking to my POTS specialist in two weeks and I want to talk about meds to help me too. What's a good option have you found best? 

I have MCAS too and am on antihistamines and sod crom. 

Thank you 

Emma 

 

 

 

 

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