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Hi,

Looking at the POTS diagnosis criteria and it mentions HR increase within the first 10 minutes.

In my TTT I went from 60 -> 140 instantly and when I stand up I get the instant increase as well.  The opposite is also true, when going from standing to sitting/lying my HR generally drops back immediately unless I've been exercising etc.

Just wondering what others experience on the TTT/upon standing - do you have an instant rise or more gradual over that 10 minutes?

Thanks.

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In my case the increase is within the first 5 minutes and goes ( for example ) from 60 to 120 within 1 or 2 minutes and then above 150 within the next few minutes. This is also accompanied by a spike in BP - I have HPOTS. 

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My BP drops immediately, HR goes up then BP comes up around 2 -5 minutes standing still with HR decrease, then at 10 minutes BP starts dropping and HR goes back up. This is on lots of meds. I think it did something similar on the tilt (no meds)  but that experience was so awful I think I have completely blocked it from my mind. Plus it was 5 years ago.

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It is not unusual to have a big change in BP or HR based on change in position, even for healthy people.   With POTS there is a sustained increase of 30 bpm or more.   In other words a healthy person might go from 70bpm sitting to 120 standing, but then within a few seconds or minutes their HR settles down at 85 or 90.   With us we stand and it goes to 140 and either stays there, keeps going up or comes back to 110-120.

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Thanks for the responses.  I've been diagnosed with POTS and have the sustained increase.  I just wondered how I fit in with others here.

Wondering if based on the timing of things you could further classify some sort of cause.  If I increase instantly does that point to a different mechanism than someone who slowly increases over 5-10 minutes.

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6 hours ago, MedMystery said:

If I increase instantly does that point to a different mechanism than someone who slowly increases over 5-10 minutes.

Hmmm - I don't really know!! I think an autonomic specialist would probably know the answer. Personally I think that a sudden increase in HR would lead more to blood pooling - that just makes sense to me. The blood pooling occurs immediately upon standing whereas later increases in HR and/or BP are caused by inadequate attempts to stop the pooling. I have HPOTS and NCS and often the symptoms from NCS happen more immediate after standing as opposed to the HPOTS symptoms that occur after a period of the ANS trying to adjust. Of course these are just musings on my part as I don't really know the answer to your questions!!! 

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