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Urgent need for help


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I avoid standing still as much as humanly possible. If I have to stand I generally shift my weight back and forth, do mini squats, march in place, etc. Doing leg and core strengthening helps to keep the blood pumping up to my brain better. 

Flares seriously suck - I've been in one for six weeks now - but stressing about them just makes it worse. Try to relax into your symptoms as much as you're able while you wait to see the specialist. We all understand how sucktacular it is to have all your tests come back normal and doctors telling you it's all in your head. Your symptoms are very real and don't give up until you get a competent doctor. In the meantime, take care of your body and do whatever makes you feel better. Don't push yourself. You will get through this.

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