Jump to content

POTS and Hunger


Recommended Posts

Hello, all. I hope everyone is feeling good today.  I have a question relating to the possible effects of getting hungry as relates to POTS.  Previously (pre-POTS), if I waited too long to eat and started to get really hungry, I would eat as soon as I could and then feel fine afterwards.  Since being diagnosed with POTS, I've noticed that if I wait too long to eat - to the point where I am really hungry - I get exhausted and after I eat get even more exhausted! It's as if being hungry takes energy out of me or something. I usually eat small frequent meals so it's easy to get out of that "mode" if I'm in a situation where there's no food around. Does this happen to anyone else? I never noticed this "pre-POTS" so I'm guessing it could be related to POTS, and it seems like it's happened too many times now to be coincidental. If it makes any difference, I take 10 mg. of a beta blocker (Propranolol) once a day, in the early morning. Thanks for any thoughts/input!

Link to comment
Share on other sites

I stuggle with food. I rarely want to eat. I used to love to eat. I find that regular eating is better for my overall condition. In general, regular routine is better for my condition. More regular meds of any kind themes to be better (1/2 twice daily vs. 1 once daily). 

I keep a small Shoulder bag on me at all times. As a man, I’ve heard plenty of purse jokes. But it’s sporty, so very few people comment on it. I keep snacks and meds in it. I also keep earplugs, sunglasses and other things that help me when my nervous system freaks out. The snacks and TUMs really help. 

Link to comment
Share on other sites

@Random-Symptom Man

On 1/28/2020 at 10:29 AM, Random-Symptom Man said:

I stuggle with food. I rarely want to eat. I used to love to eat.

This was me after my symptoms began in earnest but before I received a diagnosis and was taking any meds.  I had gastroparesis twice in the four months leading up to my diagnosis (each time lasted about two weeks and I lost ten lbs. both times) and was reduced to eating small bites of baby food just to get some nutrition on board. When I could eat, I had all kinds of other issues. I am much closer to normal now - knock wood!! since taking the beta blocker and I absolutely agree that regular eating is much better for me. I also think you are right about the snacks - I had been in the habit of always having something with me, a package of peanut butter crackers or a bottle of Ensure or Carnation, etc., and I kind of got out of that habit. Letting myself get hungry seems to cause me problems I didn't have before POTS. I think sometimes the med fools me into thinking I am back to my old self. Ha. I remember my doc did say when he diagnosed me that pretty much anything I did before POTS was off the table and it would be kind of like starting from scratch.  I thought at the time he was referring more to activity and exercise but I think now he meant a lot of different things along with that, such as eating routines!

@Peter Charlton

On 1/29/2020 at 3:31 PM, Peter Charlton said:

I lost my sense of hunger, I did an experiment a year back, went v42 hours without eating as much as a peanut, still didn't feel hungry.

This was when I had the gastroparesis described above (although I did not go 42 hours with out eating anything; I ate very small amounts of baby food every so often). These days I can eat pretty well (as evidenced by the ten additional pounds I put on after putting back on the ten I lost when I had gastroparesis) but, as mentioned above, letting myself get hungry seems to affect me in a way it didn't before POTS.

Thanks to you both for your comments!!

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Create New...