Looking for Specialist in N Florida

[CallieAndToby]

Hi guys, sorry I haven't been around in awhile. Someone who was close to me treated me with more cruelty than I've ever experienced, I figured out the other day with some research he was just manipulating me the entire time. 

Anyhow, I have severe IC and I NEED the rapaflo. It's the ONLY thing that helps. But it's an alpha blocker and lowers blood pressure. My neurologist can't get me in with the local guy and vanderbilt won't accept my referral so I'm looking for someone in North Florida. I'd love to see Dr. Randy Thompson again but he's not accepting new patients even though I was established with him. I really need to see the ME specialist Dr. Klimas for several reasons including this one but she isn't accepting new patients either. Any tips? 

[MomtoGiuliana]

In case you have not looked here already, we maintain a list of specialists:

https://www.dinet.org/physicians/

So sorry you have had trouble with a close relationship.

[CallieAndToby]

HI, I've found someone. She is an ME specialist, probably the smartest, but she does tilt table tests and knows A LOT about POTS and dysautonomia since most ME patients have it. 

I'm very excited she can help with my ME as well. Dr. Irma Rey heads up the gene study and does gene medicine which is the route I need to take. Methyl folate has changed my life. Klimas and Rey have done the biggest methyl folate study specifically with ME patients and they will know how to help with the side effects. Just thought I'd elaborate if anyone else here suffers from ME/CFS.