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racingheart77

Very high blood pressure

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I just took some readings lying down and one was 150/90.  The other was 137/87. If I really relax I can get it done to 131 / 82. There are moments when it goes to normal but a lot of the time it is pretty high. I'm going to a doctor soon but just wondering if anyone has similar events.

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I regularly have spikes. The highest I have had was a hypertensive crisis — 180/120. It dropped low seconds later, very thankfully. But this indeed is something that is common with hyperPOTS and some other types of Dysautonomia.  Have you done a 24 hour monitor? That might be a good idea too!

 

 

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I hit around 150/100 the other night. This may have been the result of a new medication though. I've generally been fine or a little low for most of the last year. A few years back, I was borderline high. The last few weeks I've been a bit above 115/80 when sitting, drops below that while lying down. So yeah, all over the place. Could medication be a trigger for you? 

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Hi racingheart. I understand how scary and concerning this can be when it happens. I feel so out of control of it when it does happen. It’s very similar to the experience when my heart just speeds up and sustains and feels like it will not slow down. I’ve been having these episodes too almost daily where I start feeling hot I start feeling anxious, I feel like I’m having adrenaline surges and my BP goes up. They really make me uncomfortable. I get a spaced out feeling sometimes nauseous and for a few minutes it feels like I will have a heart attack or my head will explode. Seeing the BP up on top of all the symptoms has really frightened me. Try lying on your left side when this happens. It could be a fluke but lying on my left side has brought it down for me. Also if you feel it coming on trying just lying on your left side for a while as a way to ward it off. I really hope it works for both of us and anyone else reading. My BP can move pretty quickly going down too from these what I am going to assume are flukes. I have now become almost obsessive about checking my blood pressures and a good majority of the time my systolic is between 110-120. I at least usually feel my best there. You might try taking yours at various times during the day so that you can show your doctor what your ranges are or the 24 hour monitor someone suggested might be nice for that also. I am not running in asking for a BP med cause I am still getting some 90/55’s and feel crappy sometimes when it goes that low. My last ER trip I was so worked up. I had my self in a frazzle and had gotten a 150 reading systolic. When i got in ambulance I was 140/70 and they just act like that is no biggie and I am neurotic. The thing is I had never seen BP’s that high before. So it make me a nervous wreck. But after I got into ER they were going to take me back for an X-ray and I felt like a cold sweat lightheaded felt like I could pass out almost a hypoglycemia feeling. Well when I got back to the room my BP was 105/55. I had dropped like a elevator going down. And most likely I dropped because it is not normal for me to be that high so my body was not going to sustain that. I just get worked up at home because I feel there is no control whereas in the hospital my feeling is there is help. Although giving me something besides maybe something to calm me down might be a bad idea. When it happens though I a am frantic to the point I think I experience panic. Not sure what is causing what. But I understand it is uncomfortable and scary. I honestly think if I could relax and stay calm I would be so much better even if I got a brief spike it would come down a lot sooner if I could just relax. 

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This is currently happening to me right now. My heart rate is fluctuating between 100 - 120 while laying down and blood pressure is going way up. Last time I checked it was 147/90. I don't want to check anymore because it fluctuates constantly and I don't want to get any more worked up than I already am. I can actually see my veins very constricted in my wrists. My whole body and heart feels very wired yet my brain has a slight headache and is very tired. It's such a conflicting feeling. If I start to panic everything gets significantly worse so I'm really trying to not do that. At least it's not as bad as my last episode where it felt like fire was in my blood and I was shaking all over. Praise God that it's not that bad. It's at times like this that it feels like I should go to the ER but they never really help and also always give a lecture about anxiety. My parents are tired of this and if I do go to the ER the insurance may stop covering as I've already been there at least 4 times already. I'm hot all over and really uncomfortable. So sorry for this rant right now but I really need to vent. Does anyone out there have any tips to calm down? I'll try laying on my left side to see if that helps as lieze pointed out. It's almost if I know I shouldn't be feeling and reacting like this but my heart and body has other plans. Thanks in advance. 

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@Jwarrior77- I am very familiar with what you are experiencing. I used to get like this often and when it happened my PCP used to advise me to take another beta blocker and rest in a dark, quiet room, drink fluids and eat salty snacks. sometimes this helped but often it did not. Often these spells ended up in syncope or seizures for me ( don't worry - this is not a common symptom ). He then sent me to the ER if it got to where it would not stop and they gave m IV fluids, 1 l over 2-4 hours. This helped. I now get infusions at home, weekly and prn, and that has really helped greatly. The weekly infusions seem to prevent the episodes and if something triggers them I can take another infusion. I have been seizure-free for 14 months and only faint occaisionally. No ER visits for POTS in 14 months, either ( I used to be in ER or hospital for fluids every 6-8 weeks ). Here is an article about this: 

https://www.researchgate.net/publication/313506555_Effects_of_intermittent_intravenous_saline_infusions_in_patients_with_medication-refractory_postural_tachycardia_syndrome

Many doctors did not understand why they should give me infusions when my BP was HIGH ( normally it is a treatment for LOW BP ) but every time they gave in and did what my PCP suggested it worked - the episode ( shaking, cold hands and feet, dizziness, hypertension, chest pain, palpitations, feeling cold etc ) stopped really soon after initiating the infusion, and often this lasted until it got triggered again. 

Do you see an autonomic specialist? He/She should be made aware of this for treatment recommendations. It is extremely difficult to stop this on your own, like making a U-turn in an ocean liner. 

best wishes - I hope you will get through this soon!!!

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@Pistol Thanks for responding! I'm glad to hear that the IV fluids really helped you. I'll definitely look into getting them as I've heard it's helped many others as well. I did notice that when I went to the ER and they administred the fluids it did help me feel better. Sometimes when I went they didn't give me fluids however which was odd as I thought it was the standard procedure to do so. Now that I remember, my HR went down much faster when they did opposed to when they didn't. I should probably ask next time. I currently don't see an autonomic specialist at the moment as they aren't any in my area however I'm aware I need to see one. I have an appointment with a neurologist but have to wait 3 months before I see him because it's back logged apparently. 

I've calmed down a lot since I've posted so hopefully it won't come back. I'm probably going to try to get more rest now as my sleep schedule is all over the place. 

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@Pistol have you ever had supine hypertension?  Have IV fluids helped with that?  I am struggling with BP again, hypertension, especially supine but also OH if I take too much beta blocker.  Very frustrating.  I see the cardiologist in a couple of weeks and want to be armed with articles etc so thanks for posting the link to the article again.

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@p8d - yes, I have had many episodes of witnessed supine hypertension. Once it happened after anesthesia and they gave me IV Labetalol to bring it down. Mostly my Hypertension occurs when triggered and I usually get more symptomatic when upright, but I have been so unstable that it occurred even when lying down. It is when my general autonomic tone is hyper - nothing stops the vasoconstriction, not even my normal meds or rest. That means I let it go too far - that is why I have to very carefully listen to my body's signals and adjust my activity level ( or stress level ) around them. Often I have to stop immediately whatever I am doing and go lie down or I get so bad that even rest will no longer help. ----- However - if I get that bad IV fluids ALWAYS - without fail - normalize my Vital signs and symptoms. 

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Thanks @Pistol I seem to have developed supine hypertension mostly in the evenings and if I consume “too many” fluids.  My gastropressor response is extremely dramatic.  I basically control my BP with fluid intake (limiting mostly) and meds but the result is I am hypovolemic much of the time which brings on sympathetic surges when upright for too long-minutes to about 20-30 minutes generally.  I am always reacting instead of being in a place where I am proactive to being stable upright.  I know we all generally have higher BP in the evening but mine goes too high supine.  

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@p8d - that is why I respond so well to IV fluids. They normalize autonomic tone, decrease the urge to respond by sympathetic overcompensation ( excessive vasoconstriction ) and there fore increase blood volume. Even if I am in severe supine hypertension - they even me out, usually my BP is normal after no more than 30 minutes of SLOWLY infused fluids. Also - depending on what had triggered the unstable ANS response in the first place - often one liter will be enough to disrupt the faulty reaction for a while, until triggered again. No medications or counter-maneuvers have ever been able to stop the hypertensive, hyperadrenergic exacerbations. 

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@pistol.  Thanks!  How slowly infused?  I have read everything from 1 liter in an hour or two to 8 hours.  Thanks.

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@p8d - In my case ( and my sister's as well she also has POTS and receives infusions ) we have noted that with fast rate of infusions, like the usually recommended 1 l over 2-3 hours, we CAN become hypertensive, develop shaking episodes from freezing and the positive effects of the infusion are very short-lasting. We bot need it to infuse AT LEAST over 6 hours. This in the past has caused me to have to go to the hospital for them since I could not take an ER bed for that long. Now that I have a port and do home infusions I do 1 l over 8 hours and that does the trick without fail. I just had a set-back in POTS due to an extremely busy 2 days of helping a neighbor in need ( not being able to rest when triggered ) and my BP was high, I was extremely fatigued, cold hands and feet, irritability etc. I had to wait for Monday for the nurse to come and access my port and voila! - all is well. BP went from 156/102 to 103/70 in less than an hour and I could finally stand long enough to do the dishes. Today I am like a normal ( relatively speaking ) human being!!!!

If you have more questions - PM me !!!!!!

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