outofadream Posted October 26, 2019 Report Share Posted October 26, 2019 I’m wondering if anyone else can relate to this experience. When I overdo it or if the POTS gets triggered in a bad way, I’ll often crash afterwards and get about the symptoms you’d expect… fatigue or weakness, worse brain fog, sometimes vertigo/lightheadedness, etc. But it sometimes also seems to make me feel very grey or low emotionally too. Or it’ll make me cry, even if I don’t feel sad per se. In a bad crash, it’s literally like someone has sucked all the joy and hope out of life altogether, and it’s a very hard experience to get through. I'm pretty sure it's not just a reaction to feeling bad either; the emotional crash can be terrible even if the physical symptoms aren't as severe and vice versa. I’ve always assumed the feeling is somehow related to the high levels adrenaline dropping off, because it ALWAYS follows either physical exertion or the bad attacks where my body is really fighting to hold off a faint. On the bad days, it’ll happen multiple times throughout the day, always within a few minutes of being up and walking around. If any of you can relate to this…has anything helped you prevent either the crashes or deal with that emotional aspect that comes with them? It’s extremely hard to keep feeling this way so often. Quote Link to comment Share on other sites More sharing options...
Pistol Posted October 27, 2019 Report Share Posted October 27, 2019 @outofadream I know that when I get bad and my BP and HR soar in all directions I also get very anxious and feel extremely vulnerable. I have gotten so bad that I called ALL of my docs asking for them to respond IMMEDIATELY b/c I had a surge. People who have not ever experienced this will not be able to relate or understand - but it truly is a scary state-of-being. And yes - the aftermath of this makes me often feel like there is not ever going to be a way out. ( There is though - it passes every time!!! 😉 ) Quote Link to comment Share on other sites More sharing options...
lieze Posted October 27, 2019 Report Share Posted October 27, 2019 Yes definitely. I lose all hope. Feel doomed. Cry give up. I feel sad and down and hopeless and it lasts for 24-48 hours and then sometimes I forget and start over again. Quote Link to comment Share on other sites More sharing options...
lieze Posted October 27, 2019 Report Share Posted October 27, 2019 I’m not sure there is a way to avoid the feelings since it is probably a chemical impact to our brain. I may be off here but I think we need stronger support here of friends who understand and can encourage us through the tough times and cheer us on through a more personal chat line where whenever you feel off you can leave a message to the group chat and get a quick response. This group is a bit more formal which is understandable. I desire close friends who I can talk to either through text or phone. Quote Link to comment Share on other sites More sharing options...
Lily Posted October 28, 2019 Report Share Posted October 28, 2019 Interesting. When I overdo it, I get all the physical symptoms you mentioned but not any emotional symptoms. Just normal annoyance at my body. When I do get depressed is during a migraine. Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted October 29, 2019 Report Share Posted October 29, 2019 Im depressed by my limitations and people close to me who dont understand. It hurts when people close to you look down on you as weak or something. It causes tension. Yeah this illness sucks. Quote Link to comment Share on other sites More sharing options...
outofadream Posted July 17, 2022 Author Report Share Posted July 17, 2022 I know this post is very old, but if you see this, thank you guys for weighing in. It meant a lot to know I’m not the only one going through the emotional aspect of the crashes, although I’m so sorry some of you experience it too. I hear you on needing more people to be there and to truly empathize and understand. I’m so sorry you were feeling that pain too; I know how much it can hurt. In case you do see this, sending a lot of gentle support and care to you. I truly believe you all deserve that care and people to genuinely listen, so much, and for what it’s worth, I hear you. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.