ljfoster Posted August 1, 2019 Report Share Posted August 1, 2019 Good Afternoon, Does anyone else experience a similar phenomenon called Adipsia aka loss of thirst mechanism? This develop around the same time as my Autonomic Dysfunction/Neuropathy diagnosis. However, I have not seen it linked with my syndrome. I am interested in hearing from everyone that experiences this. Mine is so bad I have wound up in the hospital for severe dehydration because I have essentially forgotten my ability to thirst. Cheers! Logan Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 1, 2019 Report Share Posted August 1, 2019 @ljfoster - yes. I hardly ever feel thirsty and need to remind myself to drink, despite ingesting large amounts of salt. It was that way for most of my life. But if I DO get thirsty it does not end - I am like a camel and cannot stop drinking. However - I do not really get dehydrated b/c since onset of POTS I drink all day long, part of my treatment regime. Quote Link to comment Share on other sites More sharing options...
toomanyproblems Posted August 1, 2019 Report Share Posted August 1, 2019 I have had this all my life. As a little kid my urine would become so concentrated it would burn. Instinctively I knew to drink more when this happened even that young. I rarely have any thirst. I have to force myself to drink. I find it exhausting to make myself drink enough and usually fall short of my goal. Quote Link to comment Share on other sites More sharing options...
WinterSown Posted August 2, 2019 Report Share Posted August 2, 2019 I lost my thirst when my symptoms came on, lost my appetite and 60 lbs too. I can eat better now but thirst is still a bit problem. Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted August 2, 2019 Report Share Posted August 2, 2019 I am never thirsty and don't enjoy drinking. I do it to be good. It doesn't matter how hot it is or that I eat 15gm sodium daily... I never understood why people craved liquids. No one seems interested in this at all. Quote Link to comment Share on other sites More sharing options...
brainchild Posted August 13, 2019 Report Share Posted August 13, 2019 Yet another quirk that has a cause! I’ve never had a thirst drive, unless of course I had eaten something super salty. I always figured I got enough water from my food. I used to drink maybe one glass of water per day. Of course that’s different now. I didn’t understand when others went crazy for drinks or carried water all the time. I tried carrying water, but I never drank it. Oddly, I’ve had an excessive amount of saliva lifelong too. Dentist always comment on this. Quote Link to comment Share on other sites More sharing options...
KiminOrlando Posted August 13, 2019 Report Share Posted August 13, 2019 I am the opposite. I can't stop drinking fluids. Quote Link to comment Share on other sites More sharing options...
Delta Posted August 13, 2019 Report Share Posted August 13, 2019 Hi, @ljfoster, I've never gotten very thirsty myself. (This is all pre-POTS). There have been hot summer days when I craved a lemonade or something but in general, I have to remind myself to drink. I've had kidney stones, which the docs say is in part because I don't drink enough water, but they also tell me they are familial and my older sis has had them. When I mentioned to one doc that I don't drink when I'm not thirsty, she told me that the fact that one is thirsty actually means that they already should have been drinking. In other words, I'm *supposed* to be drinking when I'm not thirsty! I'm not so sure I believe that but I've had kidney stones three times and that was three times too many, so I try to keep on top of the water thing. But, as another poster said, I don't particularly enjoy it! Quote Link to comment Share on other sites More sharing options...
Caty Posted August 13, 2019 Report Share Posted August 13, 2019 Same here! Growing up never thought much about it until I was married and realized how much water my husband drinks and his frequent need to urinate. I used to be glad I could be all day without having to use the toilet ( just a morning and before bed visit were enough for me)... I am glad you brought it up. An other mystery solved! Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted August 13, 2019 Report Share Posted August 13, 2019 Ha, yup, me too, I thought that it was my husband who was abnormal! Why do you need water? Why do you need a bathroom? Quote Link to comment Share on other sites More sharing options...
Caty Posted August 13, 2019 Report Share Posted August 13, 2019 🤣 Exactly! I still think there’s something wrong with him! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.