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Eraena

Low Pulse Pressure?

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For a long time I’ve been having chest tightness when standing still. I wondered if it had to do anything with my BP.  It would only go away if I sat down or walked around. So, I decided to stand still for several minutes. 

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I would say it at least has something to do with your pulse.  Looks a bit high.  I know my girls definitely are sympathetic when it gets into the 100's.  Are you on a beta blocker? Some Florinef might perk your blood pressure up a bit too, which might actually take care of the high heart rate.  

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Yes your pulse pressure is low, & pulse higher than it should be for quiet standing (compared to a healthy person).

This picture is consistent with hypovolaemia & low stroke volume. 

Florinef is one option if you are a responder & can tolerate it. I would ask your doctor before taking a beta blocker as they may make your heart rate number look better, but would likely worsen your symptoms, which is more important. 

Are you on any treatment at the moment?

B xxx

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I’m on Florinef, and have been for 3 weeks. It hasn’t helped, but I’m pretty sure it’s because I’m not consuming enough sodium. I drink 80-100oz a day, but I find 5000mg of sodium a day a little hard to reach.

I’m not on a beta blocker because of low BP.  And also a slow heart rate at times. I think staying on Florinef for the time being would be ok. I go back to the doc in October for a follow-up.

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@Eraena - do you think your doctors would consider a run of IV fluids? It is a known and proven treatment for hypovolemia and some cases of dysautonomia and in my case ALWAYS ( without fail ) improves my symptoms, BP and HR. My autonomic specialist recommended it to me as an emergency fix-it when flaring but now I get it preventative. 

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@Pistol I'm thinking about doing that as my last option when symptoms become too unbearable. I can do ok with avoiding triggers that make symptoms worse: heat, large meals, hot showers etc.. I find doing calf raises (If I know I'm going to stand still for an amount of time) helps slightly with HR, lightheadedness, and even alleviates chest tightness.

By the way, does anyone else have trouble taking your BP while standing? My BP machine spits out error after error, and If it does catch it, the pulse pressure is low. It can detect just fine when sitting/lying down.

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On 7/11/2019 at 10:10 PM, Eraena said:

By the way, does anyone else have trouble taking your BP while standing? My BP machine spits out error after error, and If it does catch it, the pulse pressure is low.

Yes that can happen commonly with automatic BP cuffs if either the BP or HR are abnormal or rapidly changing. 

B xxx

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I get the low pulse pressure a lot. 

Just earlier, my pulse pressure was one of the lowest I have ever seen it — 105/95. Just two minutes later, my diastolic dropped low. 

It sure is a mystery, but as others have said, it is most likely caused by low blood volume, setting off our dysautonomia. 

As @Pistol has suggested, IV fluids could really help here. 

I am going to be asking my specialist about IV fluids as soon as I see her next. Have an upcoming appointment.

Really sorry you're also going through this. Hopefully we can both find answers. 

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