Eraena Posted July 10, 2019 Report Share Posted July 10, 2019 For a long time I’ve been having chest tightness when standing still. I wondered if it had to do anything with my BP. It would only go away if I sat down or walked around. So, I decided to stand still for several minutes. Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted July 11, 2019 Report Share Posted July 11, 2019 I would say it at least has something to do with your pulse. Looks a bit high. I know my girls definitely are sympathetic when it gets into the 100's. Are you on a beta blocker? Some Florinef might perk your blood pressure up a bit too, which might actually take care of the high heart rate. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted July 11, 2019 Report Share Posted July 11, 2019 Yes your pulse pressure is low, & pulse higher than it should be for quiet standing (compared to a healthy person). This picture is consistent with hypovolaemia & low stroke volume. Florinef is one option if you are a responder & can tolerate it. I would ask your doctor before taking a beta blocker as they may make your heart rate number look better, but would likely worsen your symptoms, which is more important. Are you on any treatment at the moment? B xxx Quote Link to comment Share on other sites More sharing options...
Eraena Posted July 11, 2019 Author Report Share Posted July 11, 2019 I’m on Florinef, and have been for 3 weeks. It hasn’t helped, but I’m pretty sure it’s because I’m not consuming enough sodium. I drink 80-100oz a day, but I find 5000mg of sodium a day a little hard to reach. I’m not on a beta blocker because of low BP. And also a slow heart rate at times. I think staying on Florinef for the time being would be ok. I go back to the doc in October for a follow-up. Quote Link to comment Share on other sites More sharing options...
Pistol Posted July 11, 2019 Report Share Posted July 11, 2019 @Eraena - do you think your doctors would consider a run of IV fluids? It is a known and proven treatment for hypovolemia and some cases of dysautonomia and in my case ALWAYS ( without fail ) improves my symptoms, BP and HR. My autonomic specialist recommended it to me as an emergency fix-it when flaring but now I get it preventative. Quote Link to comment Share on other sites More sharing options...
Eraena Posted July 11, 2019 Author Report Share Posted July 11, 2019 @Pistol I'm thinking about doing that as my last option when symptoms become too unbearable. I can do ok with avoiding triggers that make symptoms worse: heat, large meals, hot showers etc.. I find doing calf raises (If I know I'm going to stand still for an amount of time) helps slightly with HR, lightheadedness, and even alleviates chest tightness. By the way, does anyone else have trouble taking your BP while standing? My BP machine spits out error after error, and If it does catch it, the pulse pressure is low. It can detect just fine when sitting/lying down. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted July 14, 2019 Report Share Posted July 14, 2019 On 7/11/2019 at 10:10 PM, Eraena said: By the way, does anyone else have trouble taking your BP while standing? My BP machine spits out error after error, and If it does catch it, the pulse pressure is low. Yes that can happen commonly with automatic BP cuffs if either the BP or HR are abnormal or rapidly changing. B xxx Quote Link to comment Share on other sites More sharing options...
Scout Posted July 15, 2019 Report Share Posted July 15, 2019 I get the low pulse pressure a lot. Just earlier, my pulse pressure was one of the lowest I have ever seen it — 105/95. Just two minutes later, my diastolic dropped low. It sure is a mystery, but as others have said, it is most likely caused by low blood volume, setting off our dysautonomia. As @Pistol has suggested, IV fluids could really help here. I am going to be asking my specialist about IV fluids as soon as I see her next. Have an upcoming appointment. Really sorry you're also going through this. Hopefully we can both find answers. Quote Link to comment Share on other sites More sharing options...
Lily Posted July 18, 2019 Report Share Posted July 18, 2019 You might try drinking your sodium. Mix up a teaspoon of table salt (for 2.3 grams of sodium) in a glass of water with maybe 1/4 cup of juice. You can also find recipes online for oral rehydration solutions like the WHO uses. I have posted my favorite several times here in different threads about the topic. It will taste nasty (until you get used to the flavor!), but I have found that getting my salt this way is much more effective than salting my food. It made a huge difference in how I feel. Quote Link to comment Share on other sites More sharing options...
angelloz Posted July 24, 2019 Report Share Posted July 24, 2019 I get those reading frequently and have been diagnosed with low blood volume. Medications cause a migraine increase which leads to vomiting...so I salt and fluid load. Quote Link to comment Share on other sites More sharing options...
dannyg Posted July 25, 2019 Report Share Posted July 25, 2019 This is me. I get lightheaded but havent passed out or had other symptoms. I was at a new doctor last week, my pulse was 82 / 62, the nurse in the doctor's office told me I should go to the emergency room right now. I told her I ain't going nowhere it gets worse than that. I told her check again in 10 minutes It'll be different. She did and it was 115 over 80. Quote Link to comment Share on other sites More sharing options...
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