Anne Posted June 13, 2019 Report Share Posted June 13, 2019 My 19yr old has hEDS, POTS and MCAS. She also has gastrointenstinal stuff going on and had an autonomic seizure a few nights ago (first one) lasting an hour. She has an excellent GP and specialist physio, but really needs some specialized intervention. Can anyone in or outside Australia recommend how we find specialists who have knowledge of these conditons? It's like finding a needle in a haystack. Thanks. Quote Link to comment Share on other sites More sharing options...
Shepard1 Posted June 13, 2019 Report Share Posted June 13, 2019 Welcome to the forum, there are a couple of Specialists mentioned in posting from 2016 by Macca which I hope will help https://www.dinet.org/forums/topic/27846-specialists-in-australia/ Quote Link to comment Share on other sites More sharing options...
edriscoll Posted June 13, 2019 Report Share Posted June 13, 2019 Hello, I'm sorry to hear your daughter is ill. Our physician database has the information for 2 specialists in Australia. We are working on adding more international listings. In the meantime, we have one in Melbourne and one in Heidelberg. I don't know the distance or how far you can travel, but if they are too far away, you can call and ask for a referral to someone in your area. Specialists treating rare disorders like dysautonomia usually know other specialists. Here is their information: Dr. Murray Esler 75 Commercial Road, Melbourne, 3004, Australia 61 (0)3 8532 1111 reception@bakeridi.edu.au Dr Chris O'Callaghan 455 Lower Heidelber Rd, Heidelberg, 3084, Australia 61 (0)3 9459 2699 There was no email included in the listing. Good luck with finding a doctor and I hope your daughter finds treatment and relief soon. For future reference, the Find a Physician database can be found at https://www.dinet.org/physicians/ Quote Link to comment Share on other sites More sharing options...
Macca Posted June 14, 2019 Report Share Posted June 14, 2019 Hi Anne Dr Brendan Hanrahan at the Wesley in Auchenflower is really excellent. Very thorough and open minded. Quote Link to comment Share on other sites More sharing options...
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