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GasconAlex

Not a great neuro meeting

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At last a neurologist who listened, and did a thorough exam too. Unfortunately he has a strong suspicion of Corticobasal degeneration, which frankly isn't great news. He is not convinced that the tumor, CSF leak, skull base problems and meningitis fit some of the neuro symptoms (although the headaches may well be - hoping the operation in July works) so he is arranging a brain scintigraphy to see if this turns up indications.

So a mixed day overall.

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I have no experience with this but I am sorry that it wasn’t better news.  So much of this is so hard to deal with that new, frightening diagnoses are just cruel.  I hope that you find out what is really going on and it’s something treatable.

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