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Heartbroken

Question about (Physician Brochures)

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Are we allowed to print it out and distribute it among our PCP team (Case managers and others)? the registered nurse with my PCP is about getting on my last nerve. She knows nothing about Dysautonomia and always tries to imply that my symptoms are only from anxiety. 

 

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@Heartbroken - yes, you can print them out, everything on this site is public. That is a good idea and it is exactly what it is supposed to do - educate ANYONE about dysautonomia, not only patients. Also - there is a very helpful book called the dysautonomia project, you can get it on the website https://thedysautonomiaproject.org/  or on amazon. It is written by physicians for physicians and patients both. It is meant to be sheared with your physician. I have one and gave a copy to my PCP, another patient had already given one to my cardiologist. --- Good luck with your appointment!!!!!!

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17 hours ago, Pistol said:

@Heartbroken - yes, you can print them out, everything on this site is public. That is a good idea and it is exactly what it is supposed to do - educate ANYONE about dysautonomia, not only patients. Also - there is a very helpful book called the dysautonomia project, you can get it on the website https://thedysautonomiaproject.org/  or on amazon. It is written by physicians for physicians and patients both. It is meant to be sheared with your physician. I have one and gave a copy to my PCP, another patient had already given one to my cardiologist. --- Good luck with your appointment!!!!!!

I actually printed out your article on hyperpots and gave it to my PCP. With one of my other doctors writing up a letter of what's going on with me and that article, I think my PCP is taking me more serious. I think they thought I was faking to get disability. I'll probably print that out and give to my other doctors as well. 

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