Heartbroken Posted June 9, 2019 Report Share Posted June 9, 2019 Are we allowed to print it out and distribute it among our PCP team (Case managers and others)? the registered nurse with my PCP is about getting on my last nerve. She knows nothing about Dysautonomia and always tries to imply that my symptoms are only from anxiety. Quote Link to comment Share on other sites More sharing options...
Pistol Posted June 9, 2019 Report Share Posted June 9, 2019 @Heartbroken - yes, you can print them out, everything on this site is public. That is a good idea and it is exactly what it is supposed to do - educate ANYONE about dysautonomia, not only patients. Also - there is a very helpful book called the dysautonomia project, you can get it on the website https://thedysautonomiaproject.org/ or on amazon. It is written by physicians for physicians and patients both. It is meant to be sheared with your physician. I have one and gave a copy to my PCP, another patient had already given one to my cardiologist. --- Good luck with your appointment!!!!!! Quote Link to comment Share on other sites More sharing options...
Heartbroken Posted June 9, 2019 Author Report Share Posted June 9, 2019 Thanks Pistol. Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted June 10, 2019 Report Share Posted June 10, 2019 17 hours ago, Pistol said: @Heartbroken - yes, you can print them out, everything on this site is public. That is a good idea and it is exactly what it is supposed to do - educate ANYONE about dysautonomia, not only patients. Also - there is a very helpful book called the dysautonomia project, you can get it on the website https://thedysautonomiaproject.org/ or on amazon. It is written by physicians for physicians and patients both. It is meant to be sheared with your physician. I have one and gave a copy to my PCP, another patient had already given one to my cardiologist. --- Good luck with your appointment!!!!!! I actually printed out your article on hyperpots and gave it to my PCP. With one of my other doctors writing up a letter of what's going on with me and that article, I think my PCP is taking me more serious. I think they thought I was faking to get disability. I'll probably print that out and give to my other doctors as well. Quote Link to comment Share on other sites More sharing options...
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