DatDudue55 Posted June 1, 2019 Report Share Posted June 1, 2019 Hello all, I am somewhat newly diagnosed with dysautonomia. I went undiagnosed for roughly 3 years so I'm extremely grateful to have found some answers.ing the al I have always noted that when my diet gets thrown off (i.e. eating a lot of carbs, sugar, alcohol, etc) I experience a flare up of symptoms for about a week or so after. I am 22 years old and avoiding the alcohol is especially hard. I have never been a heavy drinker at all. but there are times where I do feel that I want to be a "normal" guy in my 20s. I know that avoiding these triggers (esp alcohol) is essential to optimizing my health and would be in my best interest to avoid it altogether. Usually I get a feverish feeling, nasal congestion, my muscles with get tight, facial flushing and fatigue will continue for about a week after these triggers. I guess my question is, if I indulge in these triggers once in a while, will it prolong my recovery time?? I have read that some people make almost a full recovery from their symptoms. but if I have a cheat meal or go out with friends and have a couple drinks, will this delay my progress in getting better? I have learned to accept that if I choose to indulge in some of these things, that I must live with the short-term consequences, but if it is ultimately deterring from my long-term progress, then I would start thinking twice about my dietary choices. Sorry if this is a newbie question! Thank you Quote Link to comment Share on other sites More sharing options...
Pistol Posted June 2, 2019 Report Share Posted June 2, 2019 @DatDudue55 - we all have to avoid our triggers but we also all cheat. I do not see how occaisional drinks would harm you long term. Having said that - plan for the recovery period afterwards. Also - there was another thread on this a while bck and someone recommended following drinks with water to stay hydrated. Alcohol dehydrates you and that is part of why it causes symptoms. Also eat a light meal and avoid heavy carbs ( they will make you crash ). --- In the end it is your decision if an evening having a few drinks with your friends is worth the consequences. Quote Link to comment Share on other sites More sharing options...
yogini Posted June 2, 2019 Report Share Posted June 2, 2019 If you drink alcohol once in a while it should be fine. When I know I will be drinking I load up on extra fluids before and that helps to minimize the effects. And when I feel like going out but not drinking, I sometimes get a club soda and tell people it's a vodka tonic. Quote Link to comment Share on other sites More sharing options...
DatDudue55 Posted June 2, 2019 Author Report Share Posted June 2, 2019 7 hours ago, Pistol said: @DatDudue55 - we all have to avoid our triggers but we also all cheat. I do not see how occaisional drinks would harm you long term. Having said that - plan for the recovery period afterwards. Also - there was another thread on this a while bck and someone recommended following drinks with water to stay hydrated. Alcohol dehydrates you and that is part of why it causes symptoms. Also eat a light meal and avoid heavy carbs ( they will make you crash ). --- In the end it is your decision if an evening having a few drinks with your friends is worth the consequences. Thank you so much! I have read that as well and I have tried to do that as it does help me a little bit. I think it is better for me to avoid it entirely as it does make me crash for at least a day or two after. Thank you again for your response! Quote Link to comment Share on other sites More sharing options...
DatDudue55 Posted June 2, 2019 Author Report Share Posted June 2, 2019 6 hours ago, yogini said: If you drink alcohol once in a while it should be fine. When I know I will be drinking I load up on extra fluids before and that helps to minimize the effects. And when I feel like going out but not drinking, I sometimes get a club soda and tell people it's a vodka tonic. Thank you for your response! I like to think a drink here and there is fine, but the guilt after is always tough to deal with knowing that you did it to yourself. But that is actually a great idea. Thank you for this! I really appreciate your response! Quote Link to comment Share on other sites More sharing options...
yogini Posted June 2, 2019 Report Share Posted June 2, 2019 Anytime. I am better now. I look back and think I wasted too much time feeling guilty (and also worrying about whether I would have a POTS episode every time I was out). It never happened, though I had to sometimes pay after the fact it was worth it. Im no doctor but think in moderation you should be fine. Quote Link to comment Share on other sites More sharing options...
Sarasw Posted June 3, 2019 Report Share Posted June 3, 2019 Could you have a histamine intolerance issue with alcohol? Or an allergy to sulphites? Does it happen with all forms of alcohol? You might want to discuss this with your doctor. Quote Link to comment Share on other sites More sharing options...
DatDudue55 Posted June 4, 2019 Author Report Share Posted June 4, 2019 On 6/2/2019 at 11:33 PM, Sarasw said: Could you have a histamine intolerance issue with alcohol? Or an allergy to sulphites? Does it happen with all forms of alcohol? You might want to discuss this with your doctor. I have thought about this as well, but sometimes I'm okay and others I'm not. I haven't really noticed a difference in reaction in certain alcohols. Quote Link to comment Share on other sites More sharing options...
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