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jenwic

vocal cord dysfunction

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I thought I had asthma and was on meds for it for 12 years.  Then I found out I don't have asthma at at all,  I have vocal cord dysfunction.  I was wondering if anyone else has it and if it is related to POTS in any way.  My main symptom is severe coughing fits several times a day.  I've seen a speech therapist and have some breathing exercises that help some but not as much as I'd like.

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I am not sure but I do find myself coughing a lot, i often swallow down the wrong hole aswell. Additionally I can find my voice is weaker than I would normally like and I get dizzy and tired when I talk too much.

 

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Sounds like you might have a vocal cord issue too.

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Potentially but it waxes and wanes with my other POTS symptoms, and I've seen it seems common in POTS.

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I have been diagnosed with a vocal cord dysfunction. For me I have hoarseness, difficulty swallowing and frequent chocking. My ENT examined my vocal cords and said that they bow and do not completely come together when they should. He recommended “filler” injections into my cords but I chose instead to participate in speech therapy.  It has helped but has not fixed the problem completely. 

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I also have vocal chord dysfunction but I also have episodic ataxia. My speech is only weird when the ataxia kicks in. I haven't tried speech therapy yet.

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Have you explored Sjogren’s’s Syndrome. I was aytipical presentation with chronic cough and vocal cord involvement (both for 2 years straight without dx). No doctor thought I had Sjogren’s until lip biopsy came back positive. So maybe worth testing. Good luck.

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No, I haven't been tested for Sjogren's syndrome.  I do have a very dry mouth and my tongue is sore and painful.

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