Kim Baker Posted April 16, 2019 Report Share Posted April 16, 2019 Hi, I’m new to the Boston area and would like to know which neurologists people have seen in this area and who you recommend. Thank you in advance. Kim Quote Link to comment Share on other sites More sharing options...
jvherenow Posted April 17, 2019 Report Share Posted April 17, 2019 I see Dr. Farhad at Mass General. He's in Dr. Oaklander's group and I like him, especially if you've already been diagnosed with SFN. He's given me a lot of options that I've read about but that no one else was offering. There are people at Beth Israel in the autonomic neurology department who are supposed to be good. I first saw Dr. Novak at Brigham and Women's. He diagnosed me with POTS and small fiber neuropathy. However, when I went to see him for treatment, he was bereft of options, very impatient, and not really interested in helping, it seemed. I then transferred to Dr. Farhad at Mass General but it took me 10 months to get the appointment. So, I recommend you start with someone in Dr. Oaklander's group at Mass General, so you don't have the double wait time (like I had first to see Dr. Novak and then to transfer). Good luck! Quote Link to comment Share on other sites More sharing options...
Sarah o Posted April 17, 2019 Report Share Posted April 17, 2019 Thankful i found this thread. I'm on over a year waitlist with dr Novak. Interesting to hear your feedback. So sick of waiting to see a dr that has zero patience when it comes to treatment help. Hoping others post some more recommendations too. Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted April 17, 2019 Report Share Posted April 17, 2019 I wrote to both of you privately. I also waited more than a year to see Dr. Novak and have had a mediocre experience with him, although I do still see him. My biggest issue was when he did my SFN biopsies DURING my TTT and then wondered why it was inconclusive!! I was so scared and in pain.... I hate making a 90 minute trip to see him and spending 3 minutes in the exam room with no new ideas, I know we are frustrating by design, but that's not our fault! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.