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Courtney812

Worse with each pregnancy, or?

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Did each pregnancy get worse for you symptom wise? 

After my first sick for a few weeks 

2nd.. this is when I got diagnosed and took awhile to get to a functioning level 

 

Over the last 6 years I've lead a pretty normal life having to remember to rest or take it easy at times. Now I'm pregnant and feel worse than ever :(

 

stress gives me bad symptoms too... I'm starting to suspect adrenal issues, as i get very bad adrenalin surges, hormones affect my POTS more than anything. And stress. 

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I only had one pregnancy, at age 33-34.  I developed severe POTS (I was disabled and at times bedbound) during the pregnancy and it became worse post partum.  I was sick for about a year.  I did not attempt another pregnancy.  However, I also did not have a diagnosis (except I was told I was depressed) until about 4 months post partum.  There are medications and other treatments that could help during pregnancy.  So much more is understood now too than 16 years ago when I was pregnant.  Do you have a specialist you could consult with--along with a high risk ob gyn?  High risk ob/gyns would know more about medications and pregnancy than other doctors would.

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For whatever reason postpartum is so hard on my body. I to was bedridden for a bit. 

 

At the moment I'm 5wks and 5 days and I feel awful. Can't eat solids...had to finally give that up yesterday so on boost and soup today. My digestion goes before anything else and it sucks. Um so afraid with each flare ill just get worse...and never get better..  but so far... I've came out of each flare.. usually lasting 3 days- 3 weeks.. so I'm hopeful and trying to remain positive.

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It's very hard to predict.   Everyone's situation is different in terms of symptoms, level of disability; and things can change over time.  For some people the flare ups can be worse over time, for others not.  After I improved greatly, I would have short flare ups lasting several days to a week at most.  Very few were bad enough to make me take off work.  But last spring I had a severe flare up.  I was bed bound/house bound for 2 months.  Fortunately there are medications and other treatments that may help.  You might look into IV fluids as an option.  This has helped me tremendously.

With pregnancy it can be more complicated to figure out what is going on bc some symptoms (eg nausea) may be more due to the pregnancy than to POTS.

 

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So sorry to here u are struggling .it is soo hard it took me six years to get diagnosed with pots mine started on delivery table or even mildly before now think about it after four miscarriages .i go though it all again for my beautiful children but it to frustrating i am still housebound wheelchair out the house most days sofa or bed ...msg me if u want ask anything 

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