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Iheartfrogs217

Fainting all the time-please help!!

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Hi all, I’m here to vent. I’m fainting or coming close to fainting all of the time (multiple times a day). I’m so incredibly scared! I hate fainting so much. I’m fainting while sitting, laying down, and standing. I just don’t know what to do anymore. My doctor keeps on saying it’s just POTS but I thought POTS only caused fainting while standing... Thanks in advance for listening and replying! 

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@Iheartfrogs217 - your doctor is wrong to dismiss your syncope as "just POTS". I used to faint just like you and was diagnosed with NCS after a TTT, the POTS diagnosis came later. Yes - the cardiologists also told me that I will just keep passing out, put me on a beta blocker and sent me on my way. Only my PCP - who witnessed many of my syncopal episodes b/c we used to work together - saw how bad I really was and took this serious. Eventually I was seen by an autonomic specialist who started me on medications and diagnosed me with hyperadrenergic POTS as well as NCS. You are right - POTS mostly causes symptoms when upright but NCS causes syncope in any position. They are both dysautonomias and treatment is similar. Are you doing the treatments that are recommended - 2 l fluid a day, increased salt intake, compression stockings … ? Are you on any meds? What does your BP and HR run? Have you had a TTT? Have you had a halter monitor? --- The frequency of syncope that you are experiencing is not acceptable and you should really see your doctor immediately. When I was as bad as you are now the only thing that gave me some relief were IV fluids. I used to work at a hospital and would pass out at work all of the time - they would send me to the ER for IV fluids and I would get some relief for several days. BE CAREFUL!!! The worst thing about fainting are the injuries you can obtain - I had several concussions, broken ribs and bad bruises from the falls. Again - please see your PCP or cardiologist right away, this should not be dismissed because it is scary and you CAN improve with proper treatment. 

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I used to pass out 20-30 times a day and know how awful it is... Now a typical day is around 3 times but still get up there sometimes. Right now I'm in Midodrine, Florinef, Northera, and daily iv fluids. Just started the Northera and we are hoping to see more improvement with it. I have POTS but also diagnosed with NCS which is compounded by my gastroperesis because I can't get adequate fluids in. Right now I'm getting 2 liters of iv fluids daily to compensate for that. Don't settle until they give you a better way to cope with symptoms. I did at one point and ended up worse because of severe deconditioning. 

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