Head in a Vice

[MeganMN]

Hello!  Finally feeling like my heart rate is stabilizing. I am tapering the Beta Blockers some, and seeing my Primary next week for some more referrals to ENT and/or Neurology. Since all this began I was having dizziness with some nausea, followed by headaches (never really had headaches before).  The headaches seem to be worsening and the dizziness is still around. Today was particularly bad with my head feeling like it is being squeeZed in a vice.  My headaches are always gone when I wake up, then progressively get worse throughout the day. Today is a doozy.  Seriously feels like when I had a spinal headache years ago... Slowly getting better as I lay on the couch.   Anyone else get this? What is the deal? Any ideas on what works to make it less painful? finally feel like my body is settling down, but these headaches........

[jklass44]

The fact that your headaches get worse throughout the day makes me think they have an orthostatic component to them. Do you notice that they ease up after laying down and resting?

I’ve suffered from headaches and migraines since I was a teen. Never been able to find a cause, (probably just a dysautonomia thing) but I’ve been able to keep them at bay for the most part by loading up on naproxen, laying in a dark room with a cold cloth and staying hydrated. 

I hope you find some relief soon and that the neurologist can help!

[Pistol]

My autonomic specialist mentioned once that headaches are common in POTS. He actually seemed surprised that I do not suffer from them. I am not sure if you tolerate caffeine but some OTC headache meds have this in them, it helps many but may be bad for your POTS. If you tolerate caffeine - meds containing caffeine are the go-to for my husband who suffers from cluster headaches.