Jump to content
Search In
  • More options...
Find results that contain...
Find results in...
Derek1987

What's the best drink for POTS sufferers?

Recommended Posts

Reading these forums I see people mention getting IV fluids etc. Is there a drink out there that will also help? I bought some Gatorade but it doesn't seem to have many ingredients in it. Mostly sugar water. 

Share this post


Link to post
Share on other sites

Hi @Derek1987 - I respond extremely well to IV fluids given over 8 hrs  but I do drink Gatorade inbetween - it is high in sodium and potassium. Other drinks that help me are salty broth and ginger ale with added salt ( tastes better than you think and the sugar/salt mix in addition to the GI friendly ginger are good for my POTS symptoms. 

Share this post


Link to post
Share on other sites

I drink water and try to get my nutrients from the other foods I eat and drink.  I usually add a wedge of citrus to spike it for flavor. I also mix soda or nectars 50/50 with water.

 

Share this post


Link to post
Share on other sites

In my opinion broth is the most effective drink is broth followed by lots of water.

Share this post


Link to post
Share on other sites
14 minutes ago, yogini said:

In my opinion broth is the most effective drink is broth followed by lots of water.

Broth can also be nourishing and comforting. Chicken soup to the rescue.

 

Share this post


Link to post
Share on other sites
3 hours ago, Pistol said:

Hi @Derek1987 - I respond extremely well to IV fluids given over 8 hrs  but I do drink Gatorade inbetween - it is high in sodium and potassium. Other drinks that help me are salty broth and ginger ale with added salt ( tastes better than you think and the sugar/salt mix in addition to the GI friendly ginger are good for my POTS symptoms. 

How often do you get IV fluids? I was on my feet earlier doing the dishes for about 20 mins. I was okay until the final couple minutes. Shaky and flushed. I want to sleep to stop the suffering. It's been a few hours since. I did drink a Gatorade though.

Share this post


Link to post
Share on other sites

For me, there's nothing that's remotely as helpful as IV fluids, which I could get daily... but I want to keep my veins nice, so I don't. 

 

The next best thing is salty broth, or my homemade electrolyte drink. My doctors recommend Banana Bag oral solution, and it's good, but I make my own with a little juice, some Lite Salt which is potassium, and sea salt dissolved in water.

Share this post


Link to post
Share on other sites

Dear @Derek1987 - after years of having to be frequently hospitalized for IV fluids when I was in a POTS flare I now have a port and get IV fluids at home weekly. I am greatly improved with NO syncopal episodes in over 4 months ( my previous record wax shy of 11 weeks ). However - current consensus is IV fluids for POTS only to be given in emergency situations or on a short-term basis. The risk of repeated IV access peripherally or long-term access as in a PICC line or port ( blood clots, infection, phlebitis ) has to be carefully considered by the physician. So - methods such as increased fluid and salt intake, compression hose, exercise, lifestyle changes and medication are usually tried first and IV fluids only if nothing else helps. It took years of displaying continuous improvement following IV fluids and no improvement from other avenues in order for me to be approved for long-term IV fluid therapy.

Share this post


Link to post
Share on other sites
14 minutes ago, Pistol said:

Dear @Derek1987 - after years of having to be frequently hospitalized for IV fluids when I was in a POTS flare I now have a port and get IV fluids at home weekly. I am greatly improved with NO syncopal episodes in over 4 months ( my previous record wax shy of 11 weeks ). However - current consensus is IV fluids for POTS only to be given in emergency situations or on a short-term basis. The risk of repeated IV access peripherally or long-term access as in a PICC line or port ( blood clots, infection, phlebitis ) has to be carefully considered by the physician. So - methods such as increased fluid and salt intake, compression hose, exercise, lifestyle changes and medication are usually tried first and IV fluids only if nothing else helps. It took years of displaying continuous improvement following IV fluids and no improvement from other avenues in order for me to be approved for long-term IV fluid therapy.

That's crazy. I'd probably have more fainting episodes but I'm glued to the bed because I feel worse if I'm not laying down. When you have your fainting episodes, do you pass completely out every time? I only went completely out once but have had several near fainting episodes or as if I'm going out but stay awake.

Share this post


Link to post
Share on other sites

@Derek1987 - to answer your question: yes. I usually am out cold when I faint unless I respond to the early warning signs and lie down before it happens. In that case I am conscious but cannot move and sometimes loose my hearing for a few seconds. This is called presyncope, in other words the state right before the blood loss to your brain shuts off completely. 

10 hours ago, Derek1987 said:

. I'd probably have more fainting episodes but I'm glued to the bed because I feel worse if I'm not laying down

That is a common problem in POTS but be aware that bed rest makes everything worse b/c you decondition and the body looses the ability to adjust to being upright. So - if you get up you faint and if you stay in bed your fainting will be worse once you get up. So here is what has helped me in the past: exercise in bed, get up several times an hour and stand leaning against a wall for a few seconds, increasing the time standing gradually each time. However - in my case once I got to the point where you are at right now my PCP would put me in the hospital or send me to the ER for IV fluids ( even without the DX of POTS IV fluids are a common way to treat syncope and presyncope ). My specialist has given me several times a prescription to get weekly IV fluids at the local hospital infusion center for one month at a time for those times when I am non-functioning. You might ask your PCP for this to see if it works for you as an emergency treatment. 

Share this post


Link to post
Share on other sites

Derek, you might try Pedialyte.  It has lots of sodium and potassium.  I get more benefit from my DIY recipe than I do from salting my food and drinking plain water.  Without having some of my salt and water this way, It is as if the salt and water are completely ineffective at making me feel less lightheaded and fatigued.  Something about the sugar helping get the salt into the bloodstream perhaps? 

 

DIY Pedialyte-like drink:  1/4 teaspoon regular salt, 1/2 teaspoon low-sodium salt, enough juice for 15 - 25 grams of carbohydrates, enough water to make 1 quart (or liter) total.  

Share this post


Link to post
Share on other sites

Pedialyte has been helpful to me, also coconut water, which is actually even richer in potassium.  I add salt to the coconut water when feeling particularly badly.

Share this post


Link to post
Share on other sites

I have a 32 ounce drink of water with a half serving of Genius Electrolyte powder mixed in every morning before exercising and getting to it with chores followed by work and etc.

A single serving of Genius Electrolyte Powder (which can be had at Amazon - I'll leave you to search the product out) contains both potassium (390 mg) and magnesium (50 mg) in easily absorbed chelated forms. It also has small amounts of zinc and phosphorous and (100% daily recommended amount of) vitamin C and is sugar free. At a cost of $22-$24 per (30 servings) container it's not inexpensive, thus I halve the amount I use while adding 1/4 teaspoon of salt (500 mg sodium) per 32 ounces water.

A cost comparison to Gatorade: A 32 ounce container of Gatorade usually sells for $0.99 at Target/ my local food stores. On occasion, it will be on sale for $0.79. 32 ounces of Gatorade provide 112.5 mg potassium, 400 mg sodium and 52.5 grams of sugar. The Genius Electrolyte product (again, using half the recommended per serving amount in combination with one quarter teaspoon of salt added) mixed in 32 ounces of water provides 195 mg potassium, 25 mg magnesium (again, in a more easily used form), 500 mg sodium, the trace amounts of zinc and phosphorous, Vitamin C and no sugar. The cost per serving of the Genius product (using half servings) is approximately $0.40 per 32 ounces water. (This using the $24 per container price of the powder but not factoring in the cost of the salt or water you provide.) 

An alternative to broth (which I also like and some times use) is adding 1/8 to 1/4 teaspoon of salt to some diluted juice. (I usually use cranberry.) If, at the same time, you eat (an average sized) half of a banana you'll take in approx. 210 mg potassium and 13.5 grams carbohydrates (half of which are sugars). Supplementing magnesium can be tough. You can always munch on a tablespoon of hemp seeds or a small piece of dark chocolate.

Share this post


Link to post
Share on other sites
35 minutes ago, ScottS said:

 

An alternative to broth (which I also like and some times use) is adding 1/8 to 1/4 teaspoon of salt to some diluted juice. (I usually use cranberry.) If, at the same time, you eat (an average sized) half of a banana you'll take in approx. 210 mg potassium and 13.5 grams carbohydrates (half of which are sugars).

I do this as well as find it effective.

Share this post


Link to post
Share on other sites

I love hemp hearts and chocolate. Part of my treatment plan is soaking in Epsom salts, and I take chelated magnesium each night. That said, I know some people add a little Epsom salt to their electrolyte drink.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×