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Low-grade fever & POTS


plaster89
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19 hours ago, Pistol said:

@HOTLIKEFIRE - have you been checked for Viral infection like Lymes disease etc?

My test came back positive ANA , they tested for lime and others and was negative however my doc is convinced it’s an auto immune ,in my area I was referred to a neurologist and rheumatologist and I won’t be able to be seen until September, so I must sit and suffer like it appears so many on this forum have.

I have constant low grade fever , trouble sleeping, trouble eating,sore throat,lost smell and taste twice ,always very tired and weak ,nauseous,blurry vision,headaches , etc...

On top of all that was diagnosed with leukemia this year also, however my blood numbers are good and my oncologist is positive this has nothing to do with my cancer. 
 

Everyday is miserable just praying for the day I get some relief .....

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@JFBMight The rheumatologist Be willing to let you try plaquenil for a few months (it takes that long to work) or a short course of steroids to see if it helps? If it does it should indicate an autoimmune disease and then they might treat for sero negative autoimmune disease. Some Drs will do this, many won’t. 

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@p8dthat's so interesting and a great idea! Definitely going to ask my doctor about it if I don't have any improvement with the current treatment. He did have me try colchicine while we were waiting for my genetic testing to come back in case it was FMF. It didn't work, but hopefully that means he'd be willing to try this. I have such a hard time comprehending how I've had these fevers daily for over a year - I feel like my thermostat is broken 😂. I really appreciate your help!

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@JFB - yes, I agree with @p8d. I hve been on Plaquenil for 5 months now and have seen a definite improvement of joint pains and fatigue!!!!

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Hi! I have low grade fevers (98.7-100.3) all the time; almost weekly. They typically present themselves as 24hr colds but make POTS symptoms worse for the following 2-5 days after. Pre-POTS-diagnosis in 2019, I got sick often but not as often as now and symptoms were closer to that of a typical cold. I wonder if this is something that is related to POTS and if there is anything that can help with it. Like many of you, I have had many a tests preformed, all coming back negative which is SO FRUSTRATING  when communicating symptoms and issues. Looking forward to finding resources and connecting with people on this forum! 

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5 hours ago, Goldfish said:

I have low grade fevers (98.7-100.3) all the time; almost weekly. They typically present themselves as 24hr colds but make POTS symptoms worse for the following 2-5 days after.

@Goldfish - it can be caused by POTS but it also can be caused by underlying inflammation or viral infections. Many people have ongoing problems after certain viral infections such as Mono, Flu etc. These days of course there is the possibility of a previous COVID infection. Sometimes viral complications can be seen in blood work and sometimes they cannot. Low-grade fevers such as you describe can have immune causes. The fact that you get sick often is also indicative that there is an immune problem, not necessarily auto-immune in nature. It may be a good idea to see an immunologist or rheumatologist, they are most knowledgeable in this area. There is also a chance that you may suffer from allergies - have you ever been checked for them? If your body is constantly fighting allergens it can cause ALL of the symptoms you experience. 

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What about mcas, that is also another possibility for the fever

 

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