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Mrs r

women in uk ? what help do u get for dysautonomia

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hey I kind of spammed  the forum sorry  im new lots questions ! not new to illness but new to forum.... six years and counting... just wondered if anyone in uk and what help u had with flares episode's extra .me &my husband are really struggling to find help for my conditions...fed up in need of  support...😴 just wondering if other women have been treat same as me in er doctors etc like all in your head cause u a women u must be hormonal or dramatic...even with a heartrate 140 it all in my head....and acardioligst note  to prove it .was told not to let it consume my life ! by last doctor in er I felt so belittled angry upset I needed help not macho with a title who was maybe couple years older than me … I really am scared don't no who to turn to in case of flares guess I have no choice but to go to a&e if am unwell 

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watermama., I am so sorry for what you are going through....I too have been BRUTALLY abused by some really cruel and evil doctors at the A&E......they seem to be the bottom of the barrel for the doctor population......I really only go as a very last resort......I would be glad to chat with you anytime....please don't let those evil doctors make you second guess your own mind.....

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@Watermama - it is not just in the UK that doctors are dismissive and ignorant towards dysautonomia. I live in the US and despite being treated by a renowned autonomic specialist and having recommendations from cardiologist and PCP to give IV fluids for POTS flares - anytime I had to go to ER or be admitted to hospital in severe POTS flare with hypertension and seizures or syncope they would not take it serious and have even denied IV fluids -- stating that if I can drink I do not need IV fluids. This being despite the fact that the immediate improvement from IV fluids is all documented in my medical record. Doctors do not want to hear about it b/c dysautonomia requires them to change their thinking … I am sorry that you are having such a bad time but if it is any consolation .. please know that you are not alone. Most of us have been in your shoes - if there is any doctor you know that is open to listening to you - just stick with that doc!!!! Best of luck, you may want to - hydrate, increase salt intake, rest and - once you are starting to feel better - start mild exercises. What I have found is this: DO NOT STAY IN BED - no matter what!!! Bedrest makes us worse!!!!!

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