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Iheartfrogs217

words of encouragement needed please

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Hi all, 

I am really struggling with all of this chronic illness stuff. I've been almost fainting while sitting and laying down. I get super flushed and red and have been red for over 48 hours. I'm also really, really nauseous. I'm so scared and could use some words of encouragement. Thank you so much! 

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1 hour ago, Iheartfrogs217 said:

Hi all, 

I am really struggling with all of this chronic illness stuff. I've been almost fainting while sitting and laying down. I get super flushed and red and have been red for over 48 hours. I'm also really, really nauseous. I'm so scared and could use some words of encouragement. Thank you so much! 

I've fainted or near fainted in every position.  I get flushed on a daily basis. I usually go multiple days in a row with feeling nauseated before I get a break then it comes back. I'm new to this life so I'm scared as you are. And I have no income in the household right now. The disability company for my employer is doing everything they can to get me off. So I'm stressed out on top of everything. I take Xanax to relieve my anxiety which is something I've already had. But my anxiety went into overdrive after the first time I blacked out.

 

Feeling like you don't have control anymore is so scary. You aren't alone. I think it's just a learning process on how to deal with this and what triggers your symptoms. I know some more experienced vets of this forum will have some more knowledge and bring you more comfort. But you aren't alone.

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I have never fainted. Though I have come close. I have had POTS for over 3 years now (maybe longer). It does get better and you will get through. Drink water. That is the most important. Try tart things to ease your stomach. Green grapes or dill pickles. Dill pickles have a lot of salt and that is good. Try to take things one minute at a time and try not to stress. If worse comes to worse try to sleep through the worst of it. If not don't be afraid to go to the ER. And request fluids. I hear that helps a lot of people. 

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Oh - I sooo know what you are going through! Yes - I second what @StayAtHomeMom recommends - drink fluids and eat small frequent snacks. In my case what helps for the relentless waves of nausea are gingerale and crackers. I also take Zofran orally dissolvable tablets - ask your doc for a prescription. They are easy to take because they do not cause you to get sick from swallowing a pill and they do work fast. Then - when you are able to eat and drink without nausea - the ginger ale and small snacks can keep you from getting sick. Pretzels and crackers work for me. Also - please make sure you eat cooked vegetables rather than raw ones and eat protein. I at times eat protein bars when I cannot tolerate food. Hang in there!!!!

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I agree with all that has been said ! It's really hard to believe that things can get better but they can ! It takes time to learn your triggers, what helps, when not to keep pushing through and to listen to your body . I have made many lifestyle changes and along with midodrine I do pretty well theses days but it's not an easy journey. I remember been scared ,confused and actually questioning that all these symptons could be real ! As time has gone on I have learnt to read my symptons which I can ignore and which I have to take note of I haven't fainted or has bad presyncope in about a year now .

Look after yourself x

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Hi all! I’m so sorry I am so late in responding to this!! It’s been a while since I logged in. I forgot I made a post here...brain fog. I just wanted to thank each and every one of you for your comments and support!! It means so much in such a trying time. I hope you all are well! 

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2 hours ago, Iheartfrogs217 said:

Hi all! I’m so sorry I am so late in responding to this!! It’s been a while since I logged in. I forgot I made a post here...brain fog. I just wanted to thank each and every one of you for your comments and support!! It means so much in such a trying time. I hope you all are well! 

How are you holding up?

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32 minutes ago, Iheartfrogs217 said:

@Derek1987 thanks so much for asking! I’m not holding up well. I’m fainting so much and I’m still really scared. :( How are you?? 

I'm sorry. I'm scared Everyday if it makes you feel better. I take Xanax to help with the major anxiety that has come with this. Anxiety itself seems to make my symptoms worse. 

 

I would go back and read this whole thread again but I'm soooo tired. My wife is sick so I went to the doctors with her and did a bit of driving today even though I'm not supposed to. Small tasks make me so tired. I took a 4 hour nap when I got home. I went out for about an hour the other day and I was so tired I had to sleep. Pathetic. When I went to the doctor with her last time, I almost had a fainting episode. 

It is scary. I can't go out to eat or do much of anything. When I do usually my body wants to faint. The fatigue is off the charts upon all of the other symptoms. Pretty much every moment I'm awake I'm suffering in some form. And the fainting part is the worst of it all. When I feel like I'm about to faint I immediately lay down. It's been working for me so far. The very first time I fainted I was at Olive garden. I blacked out. When I was coming to, I couldn't move or even speak. I was still sitting up. When I got into the ambulance and laying down of course, I remember the paramedic telling me my blood pressure was coming back up. By the time I got to the hospital and talked to the doctor it was like I regained all my strength but I was drained.

I'm very new to this so I know the vets have a lot more knowledge than I do. But don't feel like you are alone. 

 

Are you seeing any specialists? Have you been diagnosed? What are they doing for you as far as treatment? What tests have they done?

 

 

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