Does this sound like POTS?

[sydpop]

My 16 yr old daughter has been going through episodes of dizziness to the point of almost passing out. She loses her vision and hearing.  Lights In school seem to make it worse. She is wiped out afterwards.  This has been going on for 4 years now. We have seen a CHOP cardiologist ( all testing normal) a neurologist ( who thinks she is having migraines but without the actual headache) and a hematologist ( all blood work normal) My daughter does tend to have low blood pressure at times and was advised to keep her salt levels and electrolytes up. Someone mentioned to me that she may have POTS, but I am not sure... Any advice??

[WinterSown]

Without knowing what the tests were I'd still celebrate getting a good cardiology report and good reports from the other doctors showing no defect. There are multiple forms of dysautonomia, POTS is only one of them. Obviously only a doctor can diagnose but I'd ask your doctor to check your daughter for vertigo using the Dix Hallpike Maneuver which can be done in the office, is non invasive, and will tell in moments if she has vertigo. I would also consider discussing her visiting an ENT or Audiologist to rule out any physical defect within her ear which can cause many disturbing changes to how you process with your senses. I would not hesitate to ask the doctor to consider sensory overload as a trigger for your daughter's symptoms. I hope she feels better soon, sensory overload is one of my biggest triggers. I've learned to shop at slowest hours, we dine in the quiet restaurants. go to the tiny museums and rural parks on vacations, I walk and exercise mostly at night, etc. It all helps. Management is very possible once you realize your triggers.

 

[StayAtHomeMom]

If it is safe I would have her do a poor man's tilt table test. Write your data down and bring it to her cardiologist. The cardiologist can order a Tilt Table Test. The TTT will show if she has POTS or another form of dysautonomia.

At her age dehydration is a possibility so make sure she is drinking plenty of water. 

You mentioned a little about her BP but not HR. POTS is defined by an increase of 30 BPM or over 120 when going from laying to standing. If she doesn't have the HR increase it can't be POTS. There are many conditions that can cause dizziness though. 

Statistically speaking having POTS her age, it is possible to grow out of it. My 15 year old son is exhibiting POTS symptoms. He gets a TTT done at the end of the month. If he has it I hope he grows out of it.

I hope she feels better soon.