blizzard2014 Posted September 4, 2018 Report Share Posted September 4, 2018 I have been having a rough week this week. Despite doubling up on meds for the last two days and even using Clonidine at night, my BP is still surging to 130/99 when standing. I really don't know what to do. I'm getting tired of this roller coaster ride. With my diabetes, I stopped micro-managing my blood sugar and just aim for target ranges. Should I do the same thing for BP? I mean, it's never going to be normal or behave. So, 130/99 is high, but not stroke level high. Maybe I should be glad with that and just aim for the big number under 140-150 and the smaller number under 100. I have been having headaches when standing and sitting as well. But sitting my BP is 109/80. I would not care about the standing spikes if I did not have a part time job. I am also getting that lightheaded wanting to pass out feeling, even when driving, but never pass out. I'm getting tired of this yoyo stuff. I went for a few weeks and just stopped checking my BP all together until I began to feel unwell and had to check it. I mean, something has to kill us. That's why I don't try and strive for perfect blood sugar numbers anymore. I'm not gonna sit here and spend my days correcting every little glitch in a body that is no longer functioning properly just so I can live a few extra years. It's like my body just goes all resistant to the medication. Same thing happens with Insulin. I go for weeks with one dose working wonders and then stops working, go higher, then bam get low blood sugar and need to lower the dose. Everything is constantly changing. It's not like the cholesterol pill, just take once a day and all is good. I wish I could dump all these meds and medical devices and be done with it all. But I feel worse without the meds. This condition is a crazy condition that does not like to cooperate. Quote Link to comment Share on other sites More sharing options...
blizzard2014 Posted September 4, 2018 Author Report Share Posted September 4, 2018 Right now my BP is 140/114. But it is 110/76 when sitting down. I'm just so frustrated with this. Maybe I need to remain seated for the rest of my life. Quote Link to comment Share on other sites More sharing options...
Pistol Posted September 4, 2018 Report Share Posted September 4, 2018 @blizzard2014 - when I get this bad I either go get fluids ( in my case they often correct the symptoms and the BP ) or - if BP goes up like that after the fluids - I get my meds reviewed. I was in your exact shoes in July and was hospitalized for fluids. The BP came down but after 2 days went back up again. I called my autonomic specialist and they increased one of my meds ( Diltiazem, a calcium channel blocker ). I have been much better ever since. What do you take for your BP? It sounds like something to dilate your blood vessels would be an option - check with your doc. -- I get the headaches in the back of my head with high BP too. And - as with you - when I go to 130/100 I am ill from it and when it goes to 150/100 or higher I take seizures from it. 140/114 and the symptoms you have needs to be addressed. Definitely go see your doc as soon as possible - I would even recommend not going to work with readings like that. Best of luck - let us know how you are doing! Quote Link to comment Share on other sites More sharing options...
StayAtHomeMom Posted September 4, 2018 Report Share Posted September 4, 2018 I would see your doctor about medication changes. There are lots of different medications to help with blood pressure. And be careful with high blood pressure. When in doubt just go to the ER. My hubby had a small heart attack a few weeks ago and it has turned our life upside down. Good luck. Quote Link to comment Share on other sites More sharing options...
p8d Posted September 4, 2018 Report Share Posted September 4, 2018 Call the Dr who deals with your BP. Mine is so whacky and frequently runs >130/85. Cardiologist just wants it less than 150/90 and I have permission to use clonidine as needed. Maybe your Dr will allow the same thing after an examination and discussion of your symptoms. Are you especially stressed about something? My BP goes up with any activity, even talking on the phone. Quote Link to comment Share on other sites More sharing options...
blizzard2014 Posted September 4, 2018 Author Report Share Posted September 4, 2018 7 hours ago, StayAtHomeMom said: I would see your doctor about medication changes. There are lots of different medications to help with blood pressure. And be careful with high blood pressure. When in doubt just go to the ER. My hubby had a small heart attack a few weeks ago and it has turned our life upside down. Good luck. Amlodipine and Lisinopril were working good, but then my ankles swelled up and I could not put my shoes on. Now I take the Lisinopril and Clonidine. But sometimes this combinations works too well and gives me low BP, other times it's like taking a sugar pill. Quote Link to comment Share on other sites More sharing options...
blizzard2014 Posted September 4, 2018 Author Report Share Posted September 4, 2018 9 hours ago, Pistol said: @blizzard2014 - when I get this bad I either go get fluids ( in my case they often correct the symptoms and the BP ) or - if BP goes up like that after the fluids - I get my meds reviewed. I was in your exact shoes in July and was hospitalized for fluids. The BP came down but after 2 days went back up again. I called my autonomic specialist and they increased one of my meds ( Diltiazem, a calcium channel blocker ). I have been much better ever since. What do you take for your BP? It sounds like something to dilate your blood vessels would be an option - check with your doc. -- I get the headaches in the back of my head with high BP too. And - as with you - when I go to 130/100 I am ill from it and when it goes to 150/100 or higher I take seizures from it. 140/114 and the symptoms you have needs to be addressed. Definitely go see your doc as soon as possible - I would even recommend not going to work with readings like that. Best of luck - let us know how you are doing! Wow, Pistol. I have never taken seizures from the high BP, but the front, top of head, and eyes sometimes feel like they're going to pop out of my head. I get this feeling like I'm being tumbled in a washing machine due to the pressures rising and falling so rapidly. When people in the ER have high BP, they usually lower it gradually. We are going high and low so fast from changing positions that it has to be causing damage. Today I will just take more Clonidine before work and take it easy. My doctor still does not understand what's happening. He said it is due to stress and emotions, labeled it as liable hypertension. The ER doc said to stop working standing jobs and get work inside an office. I have been ill a lot on my days off lately so finding a good specialist has been slow going. Most cardio doc's don't even take me seriously when I ask them to check my BP when standing. But I will press forward. Just so frustrated because I worry if I over-medicate I will pass out when driving, or at work. There is no ratio to use like you do with insulin and no way to correct like with low blood sugar and eating sweets. If you over-shoot on BP meds, you can get into some serious trouble. That's why I want to just make target ranges. Quote Link to comment Share on other sites More sharing options...
blizzard2014 Posted September 4, 2018 Author Report Share Posted September 4, 2018 4 hours ago, p8d said: Call the Dr who deals with your BP. Mine is so whacky and frequently runs >130/85. Cardiologist just wants it less than 150/90 and I have permission to use clonidine as needed. Maybe your Dr will allow the same thing after an examination and discussion of your symptoms. Are you especially stressed about something? My BP goes up with any activity, even talking on the phone. The ER doc and my doc advised me not to take Clonidine unless my BP was over 160 on the high number, and 100 on the low number. But I take them even when not that high. They really have never seen something as weird as what I have going on. Quote Link to comment Share on other sites More sharing options...
blizzard2014 Posted September 5, 2018 Author Report Share Posted September 5, 2018 I got the BP under control finally, but it's going a bit low when sitting. But it is 109/89 when standing. I can live with that. Was a bit tired at work though from the lower BP and almost couldn't finish my shift. I had to sham some of the work and then get home. I'm hurting all over now like I've been in a cage match with some MMA fighters. At least I have three days to rest now. That is the important thing. Quote Link to comment Share on other sites More sharing options...
Help4Me Posted September 5, 2018 Report Share Posted September 5, 2018 BLIZZARD... glad you got them under control....how did you do that ??? my BP is fluctuating like crazy....the highest it was was 268/168 and I lived ....it was close....and very very scary.....now they are running....140/75 about laying down and drop to 90/50 standing...ish....but sometimes they stay normal when I stand...it depends on hydration I think...??? my Pulse is still going from 65 laying down up to 120 standing.......I get my Tilt Table Test next week...I am scared of it.......having stress test today...scared of that too....it doesn't take much to scare me these days...... Quote Link to comment Share on other sites More sharing options...
blizzard2014 Posted September 6, 2018 Author Report Share Posted September 6, 2018 17 hours ago, Help4healing said: BLIZZARD... glad you got them under control....how did you do that ??? my BP is fluctuating like crazy....the highest it was was 268/168 and I lived ....it was close....and very very scary.....now they are running....140/75 about laying down and drop to 90/50 standing...ish....but sometimes they stay normal when I stand...it depends on hydration I think...??? my Pulse is still going from 65 laying down up to 120 standing.......I get my Tilt Table Test next week...I am scared of it.......having stress test today...scared of that too....it doesn't take much to scare me these days..... I went back to my old dose of meds .2 mgs of clonidine and 20 mgs of lisinopril. I had to lower meds a few weeks ago because my BP was dipping too low. Now it is dipping low again, so I an now on just under .2 mgs of clonidine and 15 mgs of lisinopril. I hope you are fine during the tilt table test. At least you're going to be getting some answers soon. Hang in there. Quote Link to comment Share on other sites More sharing options...
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