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POTSmom2

dr lawrence afrin for POTS with mast cell issues

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Has anyone with hyperadrenergic POTS seen Dr Lawrence Afrin for related mast cell issues?  If so, was he helpful?  We are told he is one of the few drs who understands hyperadrenergic POTS coupled with mast cell activation disorder (MCAD).    Has anyone seen other drs on the east coast with both MCAD and hyperadrenergic POTS expereince?  Or is it just Afrin?

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I know that Dr Blair Grubb treats patients with both. he is at University of Toledo ( UTMC ). He has done interviews about it that are online. Also - he has done many studies and articles.  

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