blizzard2014 Posted August 3, 2018 Report Share Posted August 3, 2018 I hope this post does not break any forum rules. If it does, please remove it. I was wondering if anyone here has gotten private food allergy testing, or private testing for Celiac Disease. I'm getting to the point where I want to pin down what's going on with my digestive issues, but I have so many other health issues that pestering my doctor is just going to be an endless issue for me. I have been bothering him for months and gone through a lot of tests for my various other illnesses. I hate to ask for all kinds of more tests on top of those. I want to try and get as many private tests as I can to rule things out before I go back to him for more thorough testing. I hate the doc's. I really need more specialists, but I hate begging them for help and going to them all of the time. If you can, perhaps in a PM, send me the sites of some reputable online food allergy and celiac disease testing sites, I would greatly appreciate it. You don't have to post them on here as it might be considered spam or advertising another site. I figure if these issues are going to continue to ruin my quality of life, I'm going to at least go down swinging. But before you can fight, you have to identify your enemy. Thank you all for being so supportive of me in here. I really appreciate it. Quote Link to comment Share on other sites More sharing options...
WinterSown Posted August 3, 2018 Report Share Posted August 3, 2018 Blizzard, this is not a bad post. You need a little help on getting helped. I like your attitude, I will duke it out to the end too. Complacency doesn't heal you. Get tested! It's your body, not your doctor's body. Don't forget that you have a fiduciary relationship with your doctor. You're not bothering him because he's billing and profiting from your visit. Tell him you want these tests. Dysautonomia and other syndromes go on forever---testing will be throughout your life. Might as well stop suffering sooner than later and get your allergy tests done when you want. If he balks go to another doctor. Don't put up with crappy service--you are paying to be helped. If you are not getting helped let them know why you are moving on. And, if you feel it necessary, report them to the county health office. Get back at them by not tolerating their poor service. Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 3, 2018 Report Share Posted August 3, 2018 @blizzard2014 - I am not sure why you would opt for private testing, does your insurance not cover testing if ordered by your PCP? When I need a test dome my PCP will order it ( as long as there are symptoms that suggest the necessity for the test.) For the GI issues an EGD can tell you about celiac disease as well as many other causes of your GI problems, allergy resting can be done by any allergist ( both skin testing and blood work for food allergies ). If your insurance requires a referral then TELL your doctor you need the referral for these specialists. If you do not need a referral then just schedule the appointments yourself. -- If you really want testing for allergies done you can probably just ask for it and get it done as long as you pay for it before the test is done - I believe my local lab does it that way. --- I would hate for you to pay that much money - if your PCP refuses to order the tests then please - by all means, get another one! Quote Link to comment Share on other sites More sharing options...
StayAtHomeMom Posted August 3, 2018 Report Share Posted August 3, 2018 I would get the testing done from your doctor. It is much cheaper. Even if insurance doesn't cover it most of the time hospitals and doctors offices has deals with labs or their own labs. The allergy testing I had done was done by a nurse with a scratch test and the needle testing. I special requested the needle testing because I have seen the scratch testing not be really accurate all the time. Celiac is a regular blood test. Good luck. I hope you find what you are looking for. Quote Link to comment Share on other sites More sharing options...
blizzard2014 Posted August 3, 2018 Author Report Share Posted August 3, 2018 8 hours ago, Pistol said: @blizzard2014 - I am not sure why you would opt for private testing, does your insurance not cover testing if ordered by your PCP? When I need a test dome my PCP will order it ( as long as there are symptoms that suggest the necessity for the test.) For the GI issues an EGD can tell you about celiac disease as well as many other causes of your GI problems, allergy resting can be done by any allergist ( both skin testing and blood work for food allergies ). If your insurance requires a referral then TELL your doctor you need the referral for these specialists. If you do not need a referral then just schedule the appointments yourself. -- If you really want testing for allergies done you can probably just ask for it and get it done as long as you pay for it before the test is done - I believe my local lab does it that way. --- I would hate for you to pay that much money - if your PCP refuses to order the tests then please - by all means, get another one! I only want the allergy testing because my niece on my fathers side of the family has just been confirmed to have Celiac disease. She has been suffering with crippling medical issues and also mental issues all of her life. So on my diagnosis of APS, she has also been tested and has APS. That is what I told her caused her miscarriages. She also has the Celiac as well. So, if we both have the blood clotting disorder, maybe I also have the Celiac disorder. It's been a bad week this week. I have been going to the bathroom several times a day and am still all backed up. I just started taking Magnesium and will try Miralax. I don't want to take anymore stimulant laxatives as they leave me feeling even sicker. I just have so many illnesses I bombard my doc every time I see him. I don't even know where to start. I also want help with my enlarged heart issue and would be asking for like three of four specialist referrals. It's just overwhelming for me at times and really sends my health related anxiety through the roof. But I will get one thing done at a time. I suppose I can go gluten free and dairy free for a few months and see if it helps. I will ask about the testing though. It's just a shame it is only 95 percent effective. Quote Link to comment Share on other sites More sharing options...
blizzard2014 Posted August 3, 2018 Author Report Share Posted August 3, 2018 13 hours ago, WinterSown said: Blizzard, this is not a bad post. You need a little help on getting helped. I like your attitude, I will duke it out to the end too. Complacency doesn't heal you. Get tested! It's your body, not your doctor's body. Don't forget that you have a fiduciary relationship with your doctor. You're not bothering him because he's billing and profiting from your visit. Tell him you want these tests. Dysautonomia and other syndromes go on forever---testing will be throughout your life. Might as well stop suffering sooner than later and get your allergy tests done when you want. If he balks go to another doctor. Don't put up with crappy service--you are paying to be helped. If you are not getting helped let them know why you are moving on. And, if you feel it necessary, report them to the county health office. Get back at them by not tolerating their poor service. This doc is not too bad. He will send me to specialists. I just got a little bit overwhelming for him last year when I discovered all of the blood pressure issues. I had another doc that actually researched my blood clotting disorder and stopped bothering me about higher INR levels. Some are good, some are bad. This doc will not research my blood clotting disorder, but he accepted the cancer doc's letter stating that I need a higher INR and leaves me alone to manage it on my own. Just all this stuff, already on 9 medications and insulin needles, insulin testing strips, INR self-testing strips. It's never-ending medical stuff and more medical stuff just makes me feel like I'm a trapped rat inside a cage. I spent almost 6 years cowering to my chronic pain and other medical issues, now I have been fighting since last summer when I got my part time job. Fighting hurts too, but it's better than doing nothing. I love your attitude too about going down swinging. I know doc's like to see you trying to improve yourself. My pain doc likes to see me working part time and fighting. So, I will just ask for bits and pieces of tests at a time. I am a year overdue for my cholesterol and A1C test for diabetes too. I stopped my cholesterol meds and need to see if my cholesterol went bac up again. If I was seeing all of the specialists I should be seeing, I would be spending most of my free time hanging around doc's offices lol. Quote Link to comment Share on other sites More sharing options...
WinterSown Posted August 3, 2018 Report Share Posted August 3, 2018 1 hour ago, blizzard2014 said: This doc is not too bad. He will send me to specialists. I just got a little bit overwhelming for him last year when I discovered all of the blood pressure issues. I had another doc that actually researched my blood clotting disorder and stopped bothering me about higher INR levels. Some are good, some are bad. This doc will not research my blood clotting disorder, but he accepted the cancer doc's letter stating that I need a higher INR and leaves me alone to manage it on my own. Just all this stuff, already on 9 medications and insulin needles, insulin testing strips, INR self-testing strips. It's never-ending medical stuff and more medical stuff just makes me feel like I'm a trapped rat inside a cage. I spent almost 6 years cowering to my chronic pain and other medical issues, now I have been fighting since last summer when I got my part time job. Fighting hurts too, but it's better than doing nothing. I love your attitude too about going down swinging. I know doc's like to see you trying to improve yourself. My pain doc likes to see me working part time and fighting. So, I will just ask for bits and pieces of tests at a time. I am a year overdue for my cholesterol and A1C test for diabetes too. I stopped my cholesterol meds and need to see if my cholesterol went bac up again. If I was seeing all of the specialists I should be seeing, I would be spending most of my free time hanging around doc's offices lol. Never give up. Never surrender! And feel better soon! Quote Link to comment Share on other sites More sharing options...
GardenGal Posted August 4, 2018 Report Share Posted August 4, 2018 Good idea. IgE and IgG blood testing was literally life changing for me. Have had DRASTIC improvement. And I had to just pay cash, ordered by a MPH who though out of the box. Good luck! Quote Link to comment Share on other sites More sharing options...
Weary Posted August 5, 2018 Report Share Posted August 5, 2018 garden gal: what did you find out? with my IgG food testing, there was moderate reaction to egg yolks, egg white, and both components of wheat. My general igg levels to everything was quite low, so the increase for those foods didn't put me into the stratosphere. Since those are among the very few foods i can tolerate for other reasons, i didn't give them up. I"m not surprised body generates igg to the foods we eat the most of - expected actually. But was still very glad i did it- explore every avenue. My case wasn't really responsible for much of the burden. Curious to hear your different experiences on it. cool on the ige. haven't done it since required going out for a blood draw rather than an in home finger stick. Which panel did you use and what did you find? i suspect an ige allergy to at least two things and am thinkihng about testing. OP: i'm a self hacker from way back, so please PM if you like. the two things you mentioned are quite easy to get w/o an MD. Lab credibility and price are the two factors that become relevent. Quote Link to comment Share on other sites More sharing options...
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