bombsh3ll Posted July 31, 2018 Report Posted July 31, 2018 The petition below is appealing for UK POTS patients to be able to access IV saline; https://www.change.org/p/nhs-approve-iv-saline-therapy-for-the-treatment-of-pots-under-the-nhs I would be so grateful for any signatures that could be added - even if you are not in the UK it could help indirectly in terms of clinical evidence gathering on the efficacy of saline, and also by setting a precedent that may encourage doctors in other countries to be more willing to offer this treatment. Please consider signing! B xxx Quote
MomtoGiuliana Posted August 1, 2018 Report Posted August 1, 2018 Just as a disclaimer: The petition in this post is member content. It is not endorsed by DINET, nor is DINET encouraging or suggesting members sign it. As always, DINET strongly urges you to do your own research and direct questions related to treatment, diagnosis or effectiveness to your physician who knows and understands your unique medical history. Also, generally, would like to remind members that while we do allow posting of petitions, they need to be reviewed first by the board and staff. Please send a PM prior to posting a petition link. Quote
bombsh3ll Posted August 3, 2018 Author Report Posted August 3, 2018 Thanks so much for putting this up! Please read and decide for yourselves if it is something you can support especially all those in the UK! B x Quote
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