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Thoughts on Gabapentin


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I saw my rheumatologist today for the first time since my diagnosis of POTS in February. He thinks a lot of my most bothersome symptoms could be helped with Gabapentin aka Neurontin. He said he's starting me off at a very low dose and I won't likely feel any effect until we get to at least 300 mg. He plans on increasing the dosage incrementally over the next couple of weeks. I am a little hesitant to start the Gabapentin because when I was first diagnosed with POTS my cardiologist at the time assured me that Cymbalta was going to help me,  after only one dose of the Cymbalta I ended up in the ER with a bad reaction. Has anyone tried Gabapentin? Did you notice a difference? Did it help? Did it make anything worse? Were there any bad side-effects? Thank you in advance for your answers! 

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My mom takes that for her osteoarthritis (she also has RA) as far as i know it is a medication that helps with nerve pain. Do you know why he thinks it may help. Just curious. The only insight i have is my mom doesn’t like it much. She is supposed to take it teice a day and only takes it once before bed. 

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58 minutes ago, StayAtHomeMom said:

My mom takes that for her osteoarthritis (she also has RA) as far as i know it is a medication that helps with nerve pain. Do you know why he thinks it may help. Just curious. The only insight i have is my mom doesn’t like it much. She is supposed to take it teice a day and only takes it once before bed. 

He thinks it might help my severe muscle spasms and temperature sensitivity, tingling in the extremities, brain fog, and flushing. He told me to start taking it in the evening before bed, and we will increase the dose next week. I'll start taking it tomorrow evening, I hope it helps, even if its just a little bit. 

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On 6/14/2018 at 1:08 AM, DAB19 said:

He thinks it might help my severe muscle spasms and temperature sensitivity, tingling in the extremities, brain fog, and flushing. He told me to start taking it in the evening before bed, and we will increase the dose next week. I'll start taking it tomorrow evening, I hope it helps, even if its just a little bit. 

Let me know. Those are issues that are not bothersome to me now but would be interesting if they cycle back around. Good luck. 

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Hi @DAB19 I was on gabapentin for a short stint just to see if it would help with any of my symptoms, I believe for 3-4 weeks. I was on the 300mg dosage as my doctor wanted me to try a low dose of it first as well. For me it didn't hurt or help anything, its affects felt a little like a benzodiazepine, for me for the first week I just felt more calm almost like I was on a benzo.

While I was on it, it didn't have any negative side effects, I don't know what the long term effects on being on gabapentin are though.

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  • 2 weeks later...
On 6/15/2018 at 6:21 PM, StayAtHomeMom said:

Let me know. Those are issues that are not bothersome to me now but would be interesting if they cycle back around. Good luck. 

UPDATE: I've been on the Gabapentin about a week and a half now. I started at 100mg and increased to 200mg this past Thursday. The muscle spasms are still bothersome but I think I get them less often. My first dose of the gabapentin caused a severe migraine but I haven't had one since. I'm hoping that as I continue to increase the dose I start feeling the effects more and more. My rheumatologist put me on the gabapentin, but I happen to have a new patient appointment with a neurologist coming up this week to discuss my neuromuscular symptoms. I'm hoping the neuro will have some ideas to help manage my symptoms. 

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