dizzygirl Posted July 15, 2005 Report Share Posted July 15, 2005 Himy my my, I am so fed up with having pots.. it just one of those days!!!!!!!I feel like I cant get a handle on this illness, my symptoms are really rough today.. i wasnt able to get out of bed till after 1pm, and i slept all that time.. I couldnt keep my eyes open!I am just so frustrated...My cardio doc increased my propranolol to 90mg 3 times a day, because my heart was still beating too fast, on the 60mg 3x's a day. so he upped it, I began the higher does, and my heart starts beating TOO slow, averaging about 45bpm, last night I felt so horrid, I tried taking my pulse, and I swear I couldnt find it..i could feel a very very faint pulse in my wrist.. and it was slower then 45 I think..so got ahold of the doc today and he lowered my dose back down to 60mg.3x's aday.I just feel like I cant win, in regards to heart rate issues, either its too fast or too slow, never just even keal.. so what do you do?I have been on SOOOOOOOOOOOOO many BB's over the past 3yrs, and i have not had alot of luck with them working...So what do you do???I am having such bad side effects with the Mestinon, at a hgiher dose, I'm ot sure that I can handle it much longer...I really am trying here with meds... but I am wondering if there isnt maybe another way..if anyone has any suggestion I would love to hear them... maybe so different ideas for treatment...ok I'll stop rambling now.. I just feel so defeated by pots today...linda Quote Link to comment Share on other sites More sharing options...
Ernie Posted July 16, 2005 Report Share Posted July 16, 2005 Hi,How about increasing your BB to 70 mg, 3 times a day?Ernie Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted July 16, 2005 Author Report Share Posted July 16, 2005 thats not a bad idea...do they make a 10mg dose of propranol?I will have to look into that.. Quote Link to comment Share on other sites More sharing options...
Ernie Posted July 16, 2005 Report Share Posted July 16, 2005 Yes, there is 10 mg of propranolol.Ernie Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted July 16, 2005 Report Share Posted July 16, 2005 I just wanted to say I hope things get better for you. I don't have any suggestions on meds. I just started my first mestinon so I'm not familiar with any of them. We are here for you and I hope you can get the right combination soon. You'll be in my thoughts.Dayna Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted July 16, 2005 Author Report Share Posted July 16, 2005 thank you:) Quote Link to comment Share on other sites More sharing options...
mom4cem Posted July 16, 2005 Report Share Posted July 16, 2005 Hi Dizzy,I have a 50mg of tenormin but I break it apart and take what I need. Lately it has been 12.5 2x a day, sometimes I throw another one in there but this way I try to find the most effective dose. I tried 50 mg and boy was I dragging myself around.Hopefully this might be an option for you. Quote Link to comment Share on other sites More sharing options...
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